{"id":10198,"date":"2022-11-22T01:37:00","date_gmt":"2022-11-22T01:37:00","guid":{"rendered":"https:\/\/www.itsan.org\/us\/?p=10198"},"modified":"2025-08-14T14:22:29","modified_gmt":"2025-08-14T14:22:29","slug":"third-quarter-2022-newsletter","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2022\/11\/22\/third-quarter-2022-newsletter\/","title":{"rendered":"THIRD QUARTER 2022 NEWSLETTER"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-0  el_before_av_two_third  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-ba8a6a6b06b6a4c531017e15706aa041\">\n#top .av-special-heading.av-av_heading-ba8a6a6b06b6a4c531017e15706aa041{\npadding-bottom:10px;\n}\nbody .av-special-heading.av-av_heading-ba8a6a6b06b6a4c531017e15706aa041 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-ba8a6a6b06b6a4c531017e15706aa041 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-ba8a6a6b06b6a4c531017e15706aa041 av-special-heading-h3  avia-builder-el-1  avia-builder-el-no-sibling '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >THIRD QUARTER 2022 NEWSLETTER<\/h3><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_two_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_two_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_two_third-15d750bd1b332b34c6e70b077ebbccdf av_two_third  avia-builder-el-2  el_after_av_one_full  el_before_av_one_third  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><b>Hello TSW Community!<\/b><\/p>\n<p><span style=\"font-weight: 400;\">We took you with us as we raised TSW Syndrome awareness on Capitol Hill. In September, ITSAN Board members attended annual legislative conferences with the American Academy of Dermatology (AAD) and the Coalition of Skin Disease (CSD). We<\/span><span style=\"font-weight: 400;\"> shared our personal stories and the urgent need for safer topical steroid prescribing guidelines, accurate TSW Syndrome diagnosis and treatment, and critical medical education. Each step of the way we consider the urgent need of the global TSW community.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">We can\u2019t do it alone and we appreciate your support as we fight for change. <strong>Jodie Ohr, ITSAN Treasurer shares,<\/strong> \u201cPeople are often very surprised to hear that you could fit all of ITSAN into one vehicle (albeit a larger one); when I say we&#8217;re a small non-profit, I mean <\/span><i><span style=\"font-weight: 400;\">small<\/span><\/i><span style=\"font-weight: 400;\">. We run on a very lean budget and have grand plans for support for those in our community, and we need funds to push us into the next stage of growth for an organization our size.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">We are a 501(c)(3) non-profit charity, so please consider a tax-deductible donation at <\/span><a href=\"https:\/\/www.itsan.org\/us\/donate\"><span style=\"font-weight: 400;\">www.itsan.org\/donate<\/span><\/a><span style=\"font-weight: 400;\">. We are very grateful and your high-impact support will go towards a patient registry implementation which will drive much-needed clinical research, as well as to programs that support our 16k members globally and awareness in the physician community.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Learn about ITSAN\u2019s TSW Syndrome Patient Registry <\/span><a href=\"http:\/\/ow.ly\/Nk0750Kinam\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_third-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_third  avia-builder-el-4  el_after_av_two_third  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><p><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10199\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.43.48-PM-222x300.png\" alt=\"ITSAN Executive Board Members attend legislative meetings with fellow CSD members to advocate for patients.\" width=\"330\" height=\"446\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.43.48-PM-222x300.png 222w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.43.48-PM-523x705.png 523w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.43.48-PM-450x607.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.43.48-PM.png 756w\" sizes=\"auto, (max-width: 330px) 100vw, 330px\" \/><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">ITSAN Executive Board Members attend legislative meetings with fellow CSD members to advocate for patients.<\/span><\/p>\n<\/div><\/section><\/p><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-7  el_after_av_one_third  el_before_av_one_third '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf av_one_third  avia-builder-el-8  el_after_av_hr  el_before_av_one_fourth  first flex_column_div av-zero-column-padding  '     ><p><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10204\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.52.12-PM-300x256.png\" alt=\"\" width=\"404\" height=\"344\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.52.12-PM-300x256.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.52.12-PM-705x601.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.52.12-PM-450x383.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.52.12-PM.png 756w\" sizes=\"auto, (max-width: 404px) 100vw, 404px\" \/><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">ITSAN members after meeting with senators&#8217; offices to advocate for TSW patients. No mountain is too high to overcome.<\/span><\/p>\n<\/div><\/section><\/p><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_fourth  avia-builder-el-11  el_after_av_one_third  el_before_av_two_fifth  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10205\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.54.13-PM-169x300.png\" alt=\"\" width=\"263\" height=\"467\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.54.13-PM-169x300.png 169w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.54.13-PM-398x705.png 398w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.54.13-PM-450x797.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.54.13-PM.png 496w\" sizes=\"auto, (max-width: 263px) 100vw, 263px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Natalie Lawton and her CSD team on Capitol Hill.<\/span><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_two_fifth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_two_fifth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_two_fifth-c8fc129dc35fd1ae2a1e410224d39ea8 av_two_fifth  avia-builder-el-13  el_after_av_one_fourth  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><p><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10206\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.55.54-PM-300x223.png\" alt=\"\" width=\"472\" height=\"350\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.55.54-PM-300x223.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.55.54-PM-1030x767.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.55.54-PM-705x525.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-9.55.54-PM-450x335.png 450w\" sizes=\"auto, (max-width: 472px) 100vw, 472px\" \/><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">Kelly Barta presenting her TSW story at the AAD Legislative Conference.<\/span><\/p>\n<\/div><\/section><\/p><\/div><div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-16  el_after_av_two_fifth  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-17  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4>ADVOCACY &amp; EDUCATION<\/h4>\n<p><strong>SEPTEMBER:\u00a0World Atopic Eczema Day<\/strong><\/p>\n<p><span style=\"font-weight: 400;\">ITSAN raised awareness, for the third year in a row, about World Atopic Eczema Day, on September 14th! World Atopic Eczema Day launched in 2018 in order to raise awareness about the disease. It is an initiative coordinated by GlobalSkin and the European Federation of Allergy and Airways Diseases Patients\u2019 Associations (EFA).\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">ITSAN hosted an Insta Live with Kathryn Tullos, ITSAN President and Briana Banos, the creator of the documentary \u201cPreventable\u201d on the necessity for topical steroid labeling changes to better inform and protect patients.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Watch the LIVE <\/span><a href=\"https:\/\/www.instagram.com\/p\/CigeMzCh1aG\/\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-19  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><p><div  class='avia-video av-av_video-ffbc552d7c5dad46a894c5e5f731ddc1 avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/youtu.be\/Zpi_Jke1Rts'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"ITSAN - Update Steroid Labels for Safer, More Accurate Dosing - Sign Petition!\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/Zpi_Jke1Rts?feature=oembed&autoplay=0&loop=0&controls=1&mute=0\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><br \/>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Currently, much needed usage and dosing information about topical steroids is absent or confusing. Watch this short\u00a0video to learn more.<\/p>\n<\/div><\/section><\/p><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-22  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-23  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?recruiter=264430586&amp;recruited_by_id=47313520-d3eb-11e4-9333-51121c7c12b0&amp;utm_source=share_petition&amp;utm_medium=copylink&amp;utm_campaign=petition_dashboard\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10215\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM-300x146.png\" alt=\"\" width=\"559\" height=\"272\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM-300x146.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM-1030x502.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM-768x374.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM-705x344.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM-450x219.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.10.52-PM.png 1284w\" sizes=\"auto, (max-width: 559px) 100vw, 559px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-25  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><a href=\"https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?recruiter=264430586&amp;recruited_by_id=47313520-d3eb-11e4-9333-51121c7c12b0&amp;utm_source=share_petition&amp;utm_medium=copylink&amp;utm_campaign=petition_dashboard\">Sign the Petition<\/a><\/h4>\n<p><span style=\"font-weight: 400;\">Did you have the information you needed to make an informed decision about topical steroids?<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Help us petition for safer, more accurate labeling of topical steroids!\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Having standardized usage instructions on the label will help both patients and doctors prevent overuse as well as recognize\u00a0 symptoms of adverse effects when they arise.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Sign the petition for safer labeling of topical steroids<\/span><a href=\"https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?recruiter=264430586&amp;recruited_by_id=47313520-d3eb-11e4-9333-51121c7c12b0&amp;utm_source=share_petition&amp;utm_medium=copylink&amp;utm_campaign=petition_dashboard\"><span style=\"font-weight: 400;\"> here.<\/span><\/a><\/p>\n<p><span style=\"font-weight: 400;\">Together we can raise our voices and help end TSW Syndrome!<\/span><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-27  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-28  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/www.jidonline.org\/article\/S0022-202X(22)00619-4\/fulltext\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10236\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM-300x154.png\" alt=\"\" width=\"510\" height=\"262\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM-300x154.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM-1030x529.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM-768x394.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM-705x362.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM-450x231.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-11.20.02-PM.png 1286w\" sizes=\"auto, (max-width: 510px) 100vw, 510px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-30  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>ITSAN &amp; AAN SURVEY ABSTRACT PUBLISHED!<\/strong><\/p>\n<p><span style=\"font-weight: 400;\">Kathryn Tullos, ITSAN President and Kelly Barta, ITSAN Executive Board Member and President of the Coalition of Skin Diseases, are among the authors of a recently published abstract in the Journal of Investigative Dermatology, \u201cInternational Survey: Effects of Cumulative Exposure to Corticosteroids in Patients with Eczema, Including Topical Steroid Withdrawal Syndrome (TSWS). Read more <\/span><a href=\"https:\/\/www.jidonline.org\/article\/S0022-202X(22)00619-4\/fulltext\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/p>\n<p><span style=\"font-weight: 400;\">The article abstract was developed in partnership with the Allergy Asthma Network<\/span><span style=\"font-weight: 400;\"> (AAN)<\/span><span style=\"font-weight: 400;\"> and Chicago Integrative Eczema Center, and it was presented by ITSAN as a poster presentation. <\/span><span style=\"font-weight: 400;\">Collaborating authors were Tonya Winders, President\/CEO of AAN, and Dr. Peter Lio of the Chicago Integrative Eczema Center. <\/span><span style=\"font-weight: 400;\">ITSAN <\/span><span style=\"font-weight: 400;\">presented the<\/span><span style=\"font-weight: 400;\"> abstract at the <\/span><a href=\"https:\/\/www.itsan.org\/us\/2022\/08\/29\/society-for-investigative-dermatology-sid-annual-meeting\/\"><span style=\"font-weight: 400;\">Society for Investigative Dermatology Annual Meeting<\/span><\/a><span style=\"font-weight: 400;\"> in Portland, Oregon, USA in May 2022.<\/span><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-32  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-33  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p dir=\"ltr\"><strong>OCTOBER: ITSAN &amp; AAN SURVEY PUBLISHED!<\/strong><\/p>\n<p><span style=\"font-weight: 400;\">Thank you to the eczema and TSW communities who took the survey in late 2020\/early 2021 that was developed by ITSAN and the Allergy Asthma Network (AAN). You are part of bringing change and making history! Kathryn Tullos, ITSAN President and Kelly Barta, ITSAN Executive Board Member and President of the Coalition of Skin Diseases, are among the authors of the recently published article in the Annals of Allergy, Asthma &amp; Immunology, <\/span><b>\u201cCorticosteroid Exposure and Cumulative Effects in Patients with Eczema: Results from a Patient Survey.\u201d<\/b><span style=\"font-weight: 400;\"> Collaborating authors were Dr. Luz Fonacier, Dr. Peter Lio, Dr. Belinda Sheary, as well as Mary Hart and Tonya Winders of Allergy Asthma Network. Read more <\/span><a href=\"https:\/\/www.annallergy.org\/article\/S1081-1206%2822%2901813-0\/fulltext#%20\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-35  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/www.annallergy.org\/article\/S1081-1206%2822%2901813-0\/fulltext#%20\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10231\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM-300x269.png\" alt=\"\" width=\"407\" height=\"365\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM-300x269.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM-1030x925.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM-768x690.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM-705x633.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM-450x404.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.46.14-PM.png 1298w\" sizes=\"auto, (max-width: 407px) 100vw, 407px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-37  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-38  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1111\/bjd.21822?fbclid=IwAR1o7dnZuSgQBM-S6YW6n5rjtZsEJzo1bPFDhkW4G82MZcuAIBJqcVTP7uA\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10233\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM-300x234.png\" alt=\"\" width=\"415\" height=\"323\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM-300x234.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM-1030x802.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM-768x598.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM-705x549.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM-450x350.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-15-at-10.48.38-PM.png 1264w\" sizes=\"auto, (max-width: 415px) 100vw, 415px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-40  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">We are pleased to share that ITSAN partnered on a recently published British Journal of Dermatology article:<\/span><b> \u201cThe Sound of Silence: Where are the Voices of Patients in Eczema Guideline Development?\u201d<\/b><span style=\"font-weight: 400;\"> The article was developed in collaboration with the Global Patient Initiative to Improve Eczema Care (GPIIEC), a partnership of eleven patient organizations from around the world working to improve care for eczema patients. Kathryn Tullos, ITSAN President, represented ITSAN as one of the authors of the article.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Many within the TSW community started off with eczema and developed TSW Syndrome after using topical steroids to treat their eczema. The patient voice has the power to improve care within the eczema community and to help prevent TSW Syndrome. The article highlights the critical need for the patient voice in eczema clinical practice guidelines.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Read the article <\/span><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1111\/bjd.21822?fbclid=IwAR1o7dnZuSgQBM-S6YW6n5rjtZsEJzo1bPFDhkW4G82MZcuAIBJqcVTP7uA\"><span style=\"font-weight: 400;\">here.<\/span><\/a><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-42  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-43  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4>SUPPORT ITSAN!<\/h4>\n<h4><a href=\"https:\/\/www.gofundme.com\/f\/u2ecb-wwwww?utm_campaign=p_cp+share-sheet&amp;utm_medium=copy_link_all&amp;utm_source=customer\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10256\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM-300x252.png\" alt=\"\" width=\"439\" height=\"369\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM-300x252.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM-1030x864.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM-768x644.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM-705x591.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM-450x377.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/Screen-Shot-2022-11-16-at-3.45.45-PM.png 1314w\" sizes=\"auto, (max-width: 439px) 100vw, 439px\" \/><\/a><\/h4>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-45  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><b>By supporting ITSAN, you will ensure we don\u2019t lose our seat at the table where decisions are made.<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Your donation will immediately impact our level of outreach to TSW sufferers and caregivers in need, as well as our work educating medical providers and stakeholders. Your support will help us attend medical conferences, advocate for patients, and elevate resources on ITSAN.org<\/span><\/p>\n<p><b>By supporting ITSAN, you are fighting with us for safer topical steroid guidelines and patient safety.\u00a0<\/b><\/p>\n<p><span style=\"font-weight: 400;\">We need you and everyone in the global TSW community to come together and give in any amount you are able. Help keep ITSAN going and change medical history with us!<\/span><b> <\/b><\/p>\n<p><b>Donate to ITSAN&#8217;s GoFundMe <\/b><a href=\"https:\/\/www.gofundme.com\/f\/u2ecb-wwwww?utm_campaign=p_cp+share-sheet&amp;utm_medium=copy_link_all&amp;utm_source=customer\">here.<\/a><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-47  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-48  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4>RAISING TSW SYNDROME AWARENESS<\/h4>\n<p>In September 2019, ITSAN was one of five organizations that together launched the <a href=\"https:\/\/www.morethanskindeep-eczema.com\">More Than Skin Deep<\/a> initiative to inform treatment research and development for atopic dermatitis, the most prevalent form of eczema. Since then, the initiative has continued its efforts to elevate the national dialogue around eczema and catalyze progress towards more targeted therapies.<\/p>\n<p>The more we can raise awareness within the eczema community, the more we can work together so that TSW Syndrome can be prevented.<\/p>\n<p><strong>Watch &#8220;Understanding the Lived Experience of Eczema&#8221;<\/strong> <a href=\"https:\/\/www.youtube.com\/watch?v=q0ELXVovabM&amp;t=2s\">here.<\/a><\/p>\n<p>Hear voices from the TSW and Eczema communities share their stories.<\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-50  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><div  class='avia-video av-av_video-352b061f90f929a3459d5acc358182be avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/www.youtube.com\/watch?v=q0ELXVovabM&amp;t=2s'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"Understanding the Lived Experience of Eczema\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/q0ELXVovabM?start=2&feature=oembed&autoplay=0&loop=0&controls=1&mute=0\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-52  el_after_av_one_half  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-53  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4>TSW SYNDROME SUPPORT<\/h4>\n<p><a href=\"https:\/\/open.spotify.com\/episode\/13QKroVUXW3exOU6p7iqaW?si=fef5dfb4c19c47f1&amp;nd=1\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-10285\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/melissa-300x251.png\" alt=\"\" width=\"387\" height=\"324\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/melissa-300x251.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/melissa-768x644.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/melissa-705x591.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/melissa-450x377.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/11\/melissa.png 940w\" sizes=\"auto, (max-width: 387px) 100vw, 387px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-55  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p dir=\"ltr\"><strong>The Skin Series<\/strong> presents a two-part podcast on Topical Steroid Withdrawal. In <strong>\u201cEpisode 12: Topical Steroid Withdrawal \u2013 Internals,\u201d<\/strong> Melissa Colosimo brings a personal and clinical perspective on TSW Syndrome, as a TSW survivor and naturopath in Australia.<\/p>\n<p dir=\"ltr\">From the complex symptoms TSW patients face, to external and internal coping strategies during TSW, Melissa examines a holistic path to health and wellness for individuals going through TSW Syndrome.<\/p>\n<p dir=\"ltr\"><strong>Listen<\/strong> <a href=\"https:\/\/open.spotify.com\/episode\/13QKroVUXW3exOU6p7iqaW?si=fef5dfb4c19c47f1&amp;nd=1\">here.<\/a><\/p>\n<p dir=\"ltr\">Please note: this resource is not vetted by ITSAN and ITSAN claims no affiliation.<\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-57  el_after_av_one_half  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-58  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><strong>THANK YOU ITSAN SPONSORS<\/strong><\/h4>\n<p>ITSAN has 3 amazing sponsors! The generous giving of our sponsors allows us to do the important work of our mission \u2013 raising awareness of TSW and supporting all affected individuals.\u00a0<strong>If you would like to become a sponsor<\/strong>, or know someone who would, please email or pass on our contact information \u2013\u00a0<a data-cke-saved-href=\"mailto:info@itsan.org\">info@itsan.org<\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-60  el_after_av_one_full  el_before_av_one_fourth  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/dermagen.net.au\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-9423 alignleft\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM-300x171.png\" alt=\"\" width=\"375\" height=\"214\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM-300x171.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM-1030x589.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM-768x439.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM-705x403.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM-450x257.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.19.46-AM.png 1204w\" sizes=\"auto, (max-width: 375px) 100vw, 375px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_fourth  avia-builder-el-62  el_after_av_one_half  el_before_av_one_fifth  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/yoronaturals.com\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-9425 alignleft\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.00-AM-195x300.png\" alt=\"\" width=\"100\" height=\"154\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.00-AM-195x300.png 195w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.00-AM.png 430w\" sizes=\"auto, (max-width: 100px) 100vw, 100px\" \/><\/a><\/p>\n<p><a href=\"https:\/\/balmonds.com\/collections\/topical-steroid-withdrawal\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-9426\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.21-AM-300x127.png\" alt=\"\" width=\"140\" height=\"59\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.21-AM-300x127.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.21-AM-450x191.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/08\/Screen-Shot-2022-08-18-at-12.26.21-AM.png 636w\" sizes=\"auto, (max-width: 140px) 100vw, 140px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fifth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_fifth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fifth-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_fifth  avia-builder-el-64  el_after_av_one_fourth  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-66  el_after_av_one_fifth  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-67  el_after_av_hr  el_before_av_hr  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><b>THANK YOU!<\/b><span style=\"font-weight: 400;\"> A heartfelt thank you to all of our donors whose generosity has allowed us to do this important work.\u00a0 No one should go through this debilitating condition alone or without proper medical support.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Together we can raise awareness and prevent this condition for others in the future. Please donate on our <\/span><a href=\"https:\/\/www.itsan.org\/us\/donate\/\"><span style=\"font-weight: 400;\">website<\/span><\/a><span style=\"font-weight: 400;\"> or through our <\/span><a href=\"http:\/\/paypal.com\/us\/fundraiser\/charity\/221552\"><span style=\"font-weight: 400;\">PayPal Giving Fund<\/span><\/a><span style=\"font-weight: 400;\">.\u00a0 Remember in the US, you can donate with every AMAZON purchase on <\/span><a href=\"https:\/\/smile.amazon.com\/\"><span style=\"font-weight: 400;\">AmazonSmile<\/span><\/a><span style=\"font-weight: 400;\">. Choose International Topical Steroid Awareness Network as your charity.\u00a0<\/span><\/p>\n<p><b>Many employers will also match funds<\/b><span style=\"font-weight: 400;\">, which ITSAN qualifies for using Tax ID 45-4556484 and address P.O. Box 303, Dacula, GA 30019. Some organizations will triple match funds on Giving Tuesday.\u00a0<\/span><span style=\"font-weight: 400;\">For more information email info@itsan.org<\/span><span style=\"font-weight: 400;\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-69  el_after_av_one_full  el_before_av_three_fifth '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fifth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_three_fifth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fifth-15d750bd1b332b34c6e70b077ebbccdf av_three_fifth  avia-builder-el-70  el_after_av_hr  el_before_av_hr  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 id=\"keepup\">KEEP UP WITH ITSAN<\/h3>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-72  el_after_av_three_fifth  el_before_av_one_fifth '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fifth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_fifth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fifth-15d750bd1b332b34c6e70b077ebbccdf av_one_fifth  avia-builder-el-73  el_after_av_hr  el_before_av_one_fifth  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/itsan.us7.list-manage.com\/subscribe?u=fa611379d0120776a4a8fe090&amp;id=757806ddf3\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-8080\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-5.53.56-PM-300x164.png\" alt=\"\" width=\"212\" height=\"116\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-5.53.56-PM-300x164.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-5.53.56-PM-768x419.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-5.53.56-PM-705x385.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-5.53.56-PM-450x246.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-5.53.56-PM.png 898w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a><strong>Subscribe to ITSAN&#8217;s Newsletter.<\/strong><\/p>\n<p>Click <a href=\"http:\/\/eepurl.com\/dxyaEj\">here<\/a>\u00a0to subscribe.<\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fifth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_fifth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fifth-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_fifth  avia-builder-el-75  el_after_av_one_fifth  el_before_av_one_fifth  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/www.facebook.com\/InternationalTopicalSteroidAwarenessNetworkITSAN\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-8086\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-6.18.33-PM-300x266.png\" alt=\"\" width=\"111\" height=\"98\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-6.18.33-PM-300x266.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-6.18.33-PM-450x399.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/06\/Screen-Shot-2022-06-11-at-6.18.33-PM.png 472w\" sizes=\"auto, (max-width: 111px) 100vw, 111px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" 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\/><\/a><\/p>\n<\/div><\/section><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":7,"featured_media":10348,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[25],"tags":[],"class_list":["post-10198","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/10198","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=10198"}],"version-history":[{"count":117,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/10198\/revisions"}],"predecessor-version":[{"id":10756,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/10198\/revisions\/10756"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/10348"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=10198"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=10198"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=10198"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}