{"id":12582,"date":"2023-12-20T16:42:27","date_gmt":"2023-12-20T16:42:27","guid":{"rendered":"https:\/\/www.itsan.org\/us\/?p=12582"},"modified":"2025-08-14T14:22:28","modified_gmt":"2025-08-14T14:22:28","slug":"fourth-quarter-2023-newsletter","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2023\/12\/20\/fourth-quarter-2023-newsletter\/","title":{"rendered":"FOURTH QUARTER 2023 NEWSLETTER"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-18riimuw-9def3885fa79a293a429eef5e59452f7\">\n.flex_column.av-18riimuw-9def3885fa79a293a429eef5e59452f7{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-18riimuw-9def3885fa79a293a429eef5e59452f7 av_one_full  avia-builder-el-0  el_before_av_one_full  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-18dm5y2g-7f0109d640cf98f60e54c77d792b09af\">\n#top .av-special-heading.av-18dm5y2g-7f0109d640cf98f60e54c77d792b09af{\npadding-bottom:10px;\n}\nbody .av-special-heading.av-18dm5y2g-7f0109d640cf98f60e54c77d792b09af .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-18dm5y2g-7f0109d640cf98f60e54c77d792b09af .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-18dm5y2g-7f0109d640cf98f60e54c77d792b09af av-special-heading-h3  avia-builder-el-1  avia-builder-el-no-sibling '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >FOURTH QUARTER 2023 NEWSLETTER<\/h3><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-4dyuc6w-6112a8ac10ad526c2aac7d6cfc483e72\">\n.flex_column.av-4dyuc6w-6112a8ac10ad526c2aac7d6cfc483e72{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-4dyuc6w-6112a8ac10ad526c2aac7d6cfc483e72 av_one_full  avia-builder-el-2  el_after_av_one_full  el_before_av_hr  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-17aplum0-a37ee3ab4b9136bfe15b28f6cfac987b '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 style=\"text-align: center;\"><strong>Wishing you healing this holiday season!<\/strong><\/h3>\n<h4><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12583 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/6824987177_e06f4ca229_z.jpg\" alt=\"\" width=\"640\" height=\"433\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/6824987177_e06f4ca229_z.jpg 640w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/6824987177_e06f4ca229_z-300x203.jpg 300w\" sizes=\"auto, (max-width: 640px) 100vw, 640px\" \/><\/h4>\n<h4 dir=\"ltr\"><strong>Thank you to the community for your generous donations!!<\/strong><\/h4>\n<p dir=\"ltr\">As a result of our community\u2019s generosity, we were able to continue funding the important work outlined below. Thank you SO much to all who gave! We will have an update about how much we raised in 2023 soon!<\/p>\n<p>Our fundraising efforts continue for 2024. We see glimmers of hope for a future where TSW no longer exists. Help us today by <a href=\"https:\/\/www.itsan.org\/us\/donate\/\" target=\"_blank\" rel=\"noopener\" data-cke-saved-href=\"https:\/\/www.itsan.org\/us\/donate\/\">donating<\/a>, <a href=\"https:\/\/www.gofundme.com\/\" target=\"_blank\" rel=\"noopener\" data-cke-saved-href=\"https:\/\/www.gofundme.com\/\">hosting a fundraiser<\/a>, or <a href=\"mailto:info@itsan.org?subject=I'd%20Like%20to%20Volunteer!&amp;body=Hello!%20%0A%0AI'd%20like%20to%20volunteer%20with%20ITSAN.%20I%20have%20%5Binsert%20availability%5D%20and%20the%20following%20skills%3A%20%0A%0A%5BInsert%20skills%20here%5D\" target=\"_blank\" rel=\"noopener\" data-cke-saved-href=\"mailto:info@itsan.org?subject=I'd%20Like%20to%20Volunteer!&amp;body=Hello!%20%0A%0AI'd%20like%20to%20volunteer%20with%20ITSAN.%20I%20have%20%5Binsert%20availability%5D%20and%20the%20following%20skills%3A%20%0A%0A%5BInsert%20skills%20here%5D\">volunteering<\/a>\u00a0with us!<\/p>\n<p>Together we can stop anyone else from going through TSW in the future!<\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-14k0ngzc-ffd15c3db66462789f54da115a67fd82 hr-default  avia-builder-el-4  el_after_av_one_full  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-1gmufgs-eea2e7774731689b3d62d79f4d7753d8 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><strong>ITSAN News<\/strong><\/h4>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-1499u594-9ce41c7eeddc720d9cc9b695a938d9bd\">\n.flex_column.av-1499u594-9ce41c7eeddc720d9cc9b695a938d9bd{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-1499u594-9ce41c7eeddc720d9cc9b695a938d9bd av_one_full  avia-builder-el-6  el_after_av_textblock  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-13xh3iag-044ceb57d207435759ffab70607f84f6 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12584 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/Screenshot-2023-12-19-at-10.29.17-AM.png\" alt=\"\" width=\"547\" height=\"239\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/Screenshot-2023-12-19-at-10.29.17-AM.png 547w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/Screenshot-2023-12-19-at-10.29.17-AM-300x131.png 300w\" sizes=\"auto, (max-width: 547px) 100vw, 547px\" \/><\/h4>\n<h4><strong>ICD-10 Code for TSW<\/strong><\/h4>\n<p>In late November, ITSAN submitted a proposal for a TSW ICD-10 diagnostic code to the CDC, with the support of the National Eczema Association, Allergy &amp; Asthma Network and National Institute of Allergy and Infectious Disease allergy training program leadership.<\/p>\n<p>A big THANK YOU to everyone who submitted a letter of support to the ICD-10 committee. We received 60 letters to add to our submission!<\/p>\n<p>If the proposal is accepted early next year, it will go before a review board of the ICD-10 code committee March 20th, 2024. After the review, the committee will provide a window of time for public comment and we will need hundreds of individuals from our community to weigh in voicing their support of implementing the code to offset the pushback that still exists in the medical community around TSW. Stay tuned for more soon!<\/p>\n<h4><strong>National Institute of Health\u2019s (NIH) TSW Pilot Study<\/strong><\/h4>\n<p>The participants of the NIH Pilot Study on TSW have been contacted and data about their experience and progress is still being followed and collected. Keep their eye out for the findings of the study to be published soon! We will keep you updated as we know more.<\/p>\n<h4>Patient Registry<\/h4>\n<p>ITSAN\u2019s work on the <a href=\"https:\/\/www.itsan.org\/us\/2022\/08\/07\/press-release-from-the-international-topical-steroid-awareness-network\/\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.itsan.org\/us\/2022\/08\/07\/press-release-from-the-international-topical-steroid-awareness-network\/&amp;source=gmail&amp;ust=1703175405496000&amp;usg=AOvVaw1sm7TlyiJpMkC6LblYHHVv\">Topical Steroid Withdrawal Syndrome Patient Registry<\/a>\u00a0continues on. We are in the programming stage with NORD (National Organization for Rare Disorders) and will soon move into the launch phase. This includes having our series of surveys reviewed by an IRB, or Institutional Review Board. An IRB is an administrative body established to protect the rights and welfare of human subjects recruited to participate in research. We are taking all of the steps necessary to ensure that your stories, experiences, and natural histories with TSW can be accurately collected and viewed as proper research. We are so excited to move forward and expect to launch in the first quarter of 2024. Keep an eye out!<\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-21sdzcc-d6fdbe09192599548ce81abe78931e03 hr-default  avia-builder-el-8  el_after_av_textblock  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-abf61815a02831d116b1aaa4a1b0ed13\">\n.flex_column.av-av_one_full-abf61815a02831d116b1aaa4a1b0ed13{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-abf61815a02831d116b1aaa4a1b0ed13 av_one_full  avia-builder-el-9  el_after_av_one_full  el_before_av_textblock  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-lqe00sju-ea9b89a3aa78853b8252de4980026854 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4 dir=\"ltr\">Ways to advocate RIGHT NOW!<\/h4>\n<p dir=\"ltr\"><a href=\"https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?redirect=false\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?redirect%3Dfalse&amp;source=gmail&amp;ust=1703175405496000&amp;usg=AOvVaw0-ANxbOadbu8v1lNTRdJEx\"><img loading=\"lazy\" decoding=\"async\" class=\"CToWUd aligncenter\" src=\"https:\/\/lh7-us.googleusercontent.com\/deLib6iBbnEBbuWrK7SSXJ0ZBBHmMQQxd6OdxPy6OFrv1tA2VW5lAZs-iGllRHObKml1F4tHn-iYruy9pv5jDDqWXw5S4OgBQRlfANWuv1ewy1ShpJBJVJRRT-do0JD96ijAuLYO0dENMw8w2NYwo7A\" width=\"398\" height=\"194\" crossorigin=\"\" data-bit=\"iit\" \/><\/a><\/p>\n<p>Sign the petition for topical steroid labeling changes! We have nearly 1500 signatures so far. Help us show the true numbers of people who care about this issue. In our meetings with the FDA and other governing bodies throughout the world, it helps to have real numbers present to them &#8211; and every voice counts. Please share with friends and loved ones and let\u2019s show up!\u00a0 Sign <a href=\"https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?redirect=false\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.change.org\/p\/petition-for-safer-more-accurate-labeling-of-topical-steroids?redirect%3Dfalse&amp;source=gmail&amp;ust=1703175405496000&amp;usg=AOvVaw0-ANxbOadbu8v1lNTRdJEx\">here.<\/a><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"CToWUd a6T aligncenter\" tabindex=\"0\" src=\"https:\/\/lh7-us.googleusercontent.com\/nR6OMKLIqVCW8wFW8pTfa1gtGeUvIsrNfFuLwY5hRDq5P--tDRVj5qTVDcOf_VtFQGzgj7-fze7b6lIvL2pDBSq_KBDuDGoQTSmw-po0TcSZ5U7ZtASoX5YVhEVQQVoxE6CxWkYe7HLmu7rcKpNVe2o\" width=\"163\" height=\"182\" crossorigin=\"\" data-bit=\"iit\" \/><\/p>\n<p>Report your adverse drug effects to the FDA and\/or to your country\u2019s governing body. Again, if we tell the<br \/>\ngoverning bodies there is a problem, but the numbers aren\u2019t showing up on their end, it is not nearly as impactful. Please take a few minutes to report all of your symptoms and \u201cTopical Steroid Withdrawal Syndrome\u201d specifically. Report <a href=\"https:\/\/www.accessdata.fda.gov\/scripts\/medwatch\/index.cfm?action=consumer.reporting1\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/www.accessdata.fda.gov\/scripts\/medwatch\/index.cfm?action%3Dconsumer.reporting1&amp;source=gmail&amp;ust=1703175405496000&amp;usg=AOvVaw0t1swHND6hK5FD_xxUjiLp\">here<\/a>. For guidance, watch this <a href=\"https:\/\/youtu.be\/KJHq8E_YgYY?si=u9PYzuBCvndawDqt\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/youtu.be\/KJHq8E_YgYY?si%3Du9PYzuBCvndawDqt&amp;source=gmail&amp;ust=1703175405496000&amp;usg=AOvVaw0IIbzCnF7ZKpBVErQTzJgI\">how-to video<\/a> on ITSAN\u2019s YouTube channel.<\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-av_hr-23b3846cdd0fbd0e234720a594f6db24 hr-default  avia-builder-el-11  el_after_av_textblock  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p><\/div><section  class='av_textblock_section av-lo1k2tyl-e5fe272b36686b060873fed49b815737 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><strong>Media Coverage of TSW<\/strong><\/h4>\n<\/div><\/section><\/p>\n<div class='flex_column_table av-zcnw9a0-5e5993b3ec6813063c0f41b13b3ab401 sc-av_one_half av-equal-height-column-flextable'>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-zcnw9a0-5e5993b3ec6813063c0f41b13b3ab401\">\n.flex_column.av-zcnw9a0-5e5993b3ec6813063c0f41b13b3ab401{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-zcnw9a0-5e5993b3ec6813063c0f41b13b3ab401 av_one_half  avia-builder-el-13  el_after_av_textblock  el_before_av_one_half  first flex_column_table_cell av-equal-height-column av-align-top av-zero-column-padding  column-top-margin'     ><p><section  class='av_textblock_section av-yma7q8o-a1eef4632dcc3cd91b95f90d048b3e20 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-12585 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/Screenshot-2023-12-19-at-10.50.19-AM.png\" alt=\"\" width=\"400\" height=\"276\" \/><\/p>\n<p><strong>[December] <span style=\"font-weight: 400;\"><strong>Wales Online<\/strong> &#8211;<span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.walesonline.co.uk\/news\/real-life\/dads-daily-torture-topical-steroid-28252999\"> Dad&#8217;s daily &#8216;torture&#8217; as topical steroid cream withdrawal leaves skin red raw\u00a0<\/a><\/span><\/span><\/strong><\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-12knoy4-de836928ffc97c510df79fc83a3a34d5 hr-default  avia-builder-el-15  el_after_av_textblock  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p><\/div>\n<div class='av-flex-placeholder'><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-y7498ig-aaffbe0b6576cb952555ae20b3525374\">\n.flex_column.av-y7498ig-aaffbe0b6576cb952555ae20b3525374{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-y7498ig-aaffbe0b6576cb952555ae20b3525374 av_one_half  avia-builder-el-16  el_after_av_one_half  el_before_av_one_full  flex_column_table_cell av-equal-height-column av-align-top av-zero-column-padding  column-top-margin'     ><p><section  class='av_textblock_section av-xzgh93s-6ef1631e59c32c848271d453d8462361 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12586 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/Screenshot-2023-12-19-at-10.54.21-AM-e1703001297621.png\" alt=\"\" width=\"500\" height=\"330\" \/><\/p>\n<p><b>[December] <span style=\"font-weight: 400;\"><strong>The Sun<\/strong> &#8211; <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.thesun.co.uk\/health\/24767766\/eczema-topical-steroid-withdrawal-syndrome-sex\/\">I felt like my insides were on fire and I was oozing pus for MONTHS after eczema left me raw and itching to the bone<\/a><\/span><\/span><\/b><\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-whi164-6d582383eef5ba16bc87a81c14cf39c7 hr-default  avia-builder-el-18  el_after_av_textblock  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p><\/div><\/div><!--close column table wrapper. Autoclose: 1 -->\n<div class='flex_column_table av-2tr3u4s-c93f980ca504fff2cc0652ba55c32020 sc-av_one_full av-equal-height-column-flextable'>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-2tr3u4s-c93f980ca504fff2cc0652ba55c32020\">\n.flex_column.av-2tr3u4s-c93f980ca504fff2cc0652ba55c32020{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-2tr3u4s-c93f980ca504fff2cc0652ba55c32020 av_one_full  avia-builder-el-19  el_after_av_one_half  el_before_av_hr  first flex_column_table_cell av-equal-height-column av-align-top av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-lo1lhxby-8ea24a92bd31be872d4ee2aa4b943fcc '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><b>A beautiful song about TSW by Warrior Aby Coulibaly<\/b><\/h4>\n<div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"Aby Coulibaly - Big Pharma (Withdrawal) (Lyric Video)\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/CA6dGQQxDrE?start=147&#038;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/div>\n<p dir=\"ltr\">\n<\/div><\/section><\/div><\/div><!--close column table wrapper. Autoclose: 1 -->\n<div  class='hr av-gimx9i0-cd7434f46763d56ef01543722f2a452f hr-default  avia-builder-el-21  el_after_av_one_full  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-foop8yg-919bb1b51fd2e405e4686caea4d30bf4\">\n.flex_column.av-foop8yg-919bb1b51fd2e405e4686caea4d30bf4{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-foop8yg-919bb1b51fd2e405e4686caea4d30bf4 av_one_full  avia-builder-el-22  el_after_av_hr  el_before_av_hr  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-fbv60t4-7936f56a22ff2603d244c78b498d9d2a '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4>Support ITSAN<\/h4>\n<p>When you support ITSAN, you help us raise TSW Syndrome awareness in the medical community. Your donation helps us develop new resources on ITSAN.org and provide information and support on social media and in our daily communication with TSW sufferers and caregivers around the world.<\/p>\n<p>How can you help? You can donate to ITSAN <a href=\"https:\/\/www.itsan.org\/us\/donate\/\">here<\/a> or start your own fundraiser for ITSAN. If you create a fundraiser for ITSAN, please tag us so we can share it with others. Thank you!<\/p>\n<p>Questions? Email us at info@itsan.org<\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-ccriv88-7ebab75938eea3f995e4df3354be6cdc hr-default  avia-builder-el-24  el_after_av_one_full  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-br4nlnc-d383553c5da09d1f09c534bb70b355f9\">\n.flex_column.av-br4nlnc-d383553c5da09d1f09c534bb70b355f9{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-br4nlnc-d383553c5da09d1f09c534bb70b355f9 av_one_full  avia-builder-el-25  el_after_av_hr  el_before_av_one_third  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-b463iig-eff5ac502ff46481bc04a5cd7a0bba65 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h4><strong>THANK YOU ITSAN SPONSORS<\/strong><\/h4>\n<p>The generous giving of our sponsors allows us to do the important work of our mission \u2013 raising awareness of TSW and supporting all affected individuals.\u00a0<strong>If you would like to become a sponsor<\/strong>, or know someone who would, please email or pass on our contact information \u2013\u00a0<a data-cke-saved-href=\"mailto:info@itsan.org\">info@itsan.org<\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-69zury0-1e9c28430321e9463a2c6937974fdfa4\">\n.flex_column.av-69zury0-1e9c28430321e9463a2c6937974fdfa4{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-69zury0-1e9c28430321e9463a2c6937974fdfa4 av_one_third  avia-builder-el-27  el_after_av_one_full  el_before_av_one_third  first flex_column_div av-zero-column-padding  column-top-margin'     ><p><section  class='av_textblock_section av-5962q2g-e75ccf7b7d0219b128456bb2e629f036 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-12587\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/12\/Screenshot-2023-12-19-at-10.58.55-AM.png\" alt=\"\" width=\"377\" height=\"484\" \/><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-i6mcxk-2443dc98a590449e834a2a8499ea1b66 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><\/div><\/section><\/p><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-apesa9k-6a4bef2b23c8eb51e6d3d83d0051c58f\">\n.flex_column.av-apesa9k-6a4bef2b23c8eb51e6d3d83d0051c58f{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column 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sizes=\"auto, (max-width: 271px) 100vw, 271px\" \/><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-9s0yojc-27fc783e8a4076319afc38d0f60a9d55 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/balmonds.com\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-184 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png\" alt=\"\" width=\"300\" height=\"104\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-300x104.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-768x265.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1536x531.png 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1500x518.png 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-705x244.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1210x423.png 1210w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-450x156.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green.png 1600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-9ic0ivs-de9501d49a6713d20446a0d3818ca6e5 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><\/div><\/section><br \/>\n<div  class='hr av-8zr8b20-33053f9c2171b7b48da32c3429b6cc56 hr-default  avia-builder-el-34  el_after_av_textblock  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https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.05.46-AM-1536x277.png 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.05.46-AM-1500x270.png 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.05.46-AM-705x127.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.05.46-AM-450x81.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.05.46-AM.png 1598w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-7zhr4wo-5e3cb918a0e2674ae35ac3bb0372a349 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><\/div><\/section><br \/>\n<div  class='hr av-7swobtk-dc7a67cb84d748fe0b80f5fc89d72a67 hr-default  avia-builder-el-37  el_after_av_textblock  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><br \/>\n<section  class='av_textblock_section av-72l98vs-4bafe41e9868c6e93a247f817b16bb35 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/lyonsleaf.co.uk\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-12288 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Lyonsleaf_Logo_Type_Left_PMS_4975-noCan-2-300x254.png\" alt=\"\" width=\"300\" height=\"254\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Lyonsleaf_Logo_Type_Left_PMS_4975-noCan-2-300x254.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Lyonsleaf_Logo_Type_Left_PMS_4975-noCan-2-768x650.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Lyonsleaf_Logo_Type_Left_PMS_4975-noCan-2-705x597.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Lyonsleaf_Logo_Type_Left_PMS_4975-noCan-2-450x381.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Lyonsleaf_Logo_Type_Left_PMS_4975-noCan-2.png 884w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-6m30hzs-b1c3e0354e2407e00bc165ff061a1148 hr-default  avia-builder-el-39  el_after_av_textblock  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-4kk1flk-5ccd1922043884081808abe83039f17e\">\n.flex_column.av-4kk1flk-5ccd1922043884081808abe83039f17e{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-4kk1flk-5ccd1922043884081808abe83039f17e av_one_third  avia-builder-el-40  el_after_av_one_third  avia-builder-el-last  flex_column_div av-zero-column-padding  column-top-margin'     ><p><section  class='av_textblock_section av-3hn8ri0-455546cf17783b77f21ecc185d442051 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-12211 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.16.17-AM.png\" alt=\"\" width=\"255\" height=\"43\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.16.17-AM.png 570w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.16.17-AM-300x51.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/07\/Screen-Shot-2023-07-04-at-8.16.17-AM-450x76.png 450w\" sizes=\"auto, (max-width: 255px) 100vw, 255px\" \/><\/p>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-369mjaw-956f186c15122c9bd127ee5fc0b818fc '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><\/div><\/section><br \/>\n<section  class='av_textblock_section av-2iqtplk-41dd05b8f6f1151e3d4f948a82ede8bf '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/dermagen.net.au\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-6129 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo-1030x356.jpg\" alt=\"\" width=\"120\" height=\"41\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo-1030x356.jpg 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo-300x104.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo-768x266.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo-705x244.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo-450x156.jpg 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/12\/DermaGen-logo.jpg 1203w\" sizes=\"auto, (max-width: 120px) 100vw, 120px\" \/><\/a><\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-28yd3h4-7ac991b6d875017d3b08a5d65056febf hr-default  avia-builder-el-44  el_after_av_textblock  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><br \/>\n<section  class='av_textblock_section av-61qh88-0f5444502923a17a97e76382ab364500 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><\/div><\/section><br \/>\n<section  class='av_textblock_section av-156o12w-00445c92bc073dcacc854c6d5438add9 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p style=\"text-align: left;\"><a href=\"https:\/\/www.skinsmartantimicrobial.com\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-11644 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/04\/Screen-Shot-2023-04-01-at-4.13.10-PM-e1688474322213.png\" alt=\"\" width=\"120\" height=\"37\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/04\/Screen-Shot-2023-04-01-at-4.13.10-PM-e1688474322213.png 440w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/04\/Screen-Shot-2023-04-01-at-4.13.10-PM-e1688474322213-300x92.png 300w\" sizes=\"auto, (max-width: 120px) 100vw, 120px\" \/><\/a><\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-ps96k8-e628810ade11c0b7e3a299ae5981511a hr-default  avia-builder-el-47  el_after_av_textblock  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><br \/>\n<section  class='av_textblock_section av-lmxlt3k8-b22ad7610e16e7d80aabea36a403931a '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p style=\"text-align: left;\"><a href=\"https:\/\/us.dantelabs.com\/products\/rare-disease-health-package\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-12397 aligncenter\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-300x129.png\" alt=\"\" width=\"120\" height=\"52\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-300x129.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-1030x444.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-768x331.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-1536x662.png 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-1500x647.png 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi-705x304.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2023\/08\/dantelabs_logo300dpi.png 1920w\" sizes=\"auto, (max-width: 120px) 100vw, 120px\" \/><\/a><\/p>\n<\/div><\/section><br \/>\n<div  class='hr av-l9ha24-90ba312a2d24a08347d11ea6e768f52b hr-default  avia-builder-el-49  el_after_av_textblock  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":7,"featured_media":12604,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[25],"tags":[],"class_list":["post-12582","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/12582","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=12582"}],"version-history":[{"count":7,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/12582\/revisions"}],"predecessor-version":[{"id":12602,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/12582\/revisions\/12602"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/12604"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=12582"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=12582"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=12582"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}