{"id":5628,"date":"2021-05-15T16:57:43","date_gmt":"2021-05-15T16:57:43","guid":{"rendered":"https:\/\/itsan.net\/?p=5628"},"modified":"2025-08-14T14:22:55","modified_gmt":"2025-08-14T14:22:55","slug":"first-quarter-2021-newsletter","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2021\/05\/15\/first-quarter-2021-newsletter\/","title":{"rendered":"First Quarter 2021 Newsletter"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-0  el_before_av_one_half  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 class=\"entry-title fusion-post-title\" data-fontsize=\"18\" data-lineheight=\"27\">First Quarter 2021 Newsletter<\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-5630\" src=\"https:\/\/itsan.net\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451.png\" alt=\"\" width=\"500\" height=\"145\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451.png 500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-300x87.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-495x145.png 495w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-450x131.png 450w\" sizes=\"auto, (max-width: 500px) 100vw, 500px\" \/><\/p>\n<p>Welcome to ITSAN\u2019s First Quarter 2021 Newsletter.\u00a0 Our community has grown significantly over the last few months; we count over 9k currently in ITSAN\u2019s Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries.<\/p>\n<p dir=\"ltr\">ITSAN\u2019s mission is to raise awareness of Topical Steroid Withdrawal Syndrome and to support affected individuals, caregivers and healthcare providers.<\/p>\n<p dir=\"ltr\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-5631\" src=\"https:\/\/itsan.net\/wp-content\/uploads\/2021\/05\/ITSAN-Slider-e1588025354744.png\" alt=\"\" width=\"1000\" height=\"337\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Slider-e1588025354744.png 1000w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Slider-e1588025354744-300x101.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Slider-e1588025354744-768x259.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Slider-e1588025354744-705x238.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Slider-e1588025354744-450x152.png 450w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/p>\n<p><strong>Recent achievements in TSW Syndrome recognition and thanks to:<\/strong><\/p>\n<ul>\n<li>The British Association of Dermatologists and the National Eczema Society (UK) for highlighting critical issues about Topical Steroid Withdrawal Syndrome in a joint position statement.\u00a0 Read more\u00a0<a href=\"https:\/\/eczema.org\/wp-content\/uploads\/Topical-Steroid-Withdrawal-position-statement.pdf\">here<\/a>.<\/li>\n<li>The\u00a0<a href=\"https:\/\/nationaleczema.org\/topical-steroid-withdrawal\/\">National Eczema Association<\/a>\u00a0for their informative article for individuals with eczema and their caregivers about Topical Steroid Withdrawal Syndrome \u2014 written in collaboration with top doctors, ITSAN and the TSW community.\u00a0 Read the article\u00a0<a href=\"https:\/\/go.nationaleczema.org\/blog-tsw-need-to-know\">here<\/a>. Also, check out their new \u201c<a href=\"https:\/\/nationaleczema.org\/topical-steroid-withdrawal\/\">TSW hub<\/a>\u201d with new information on TSW updated monthly.<\/li>\n<li>Joana Ceddia, a popular YouTuber who shared her experience going through TSWS and has received over 2.6 million views! View the video\u00a0<a href=\"https:\/\/www.youtube.com\/watch?v=AYn8fjH0EBM\">here<\/a>.<\/li>\n<li>\u00a0Dr. Heba Khaled and translators who have helped make the comprehensive video, \u201cA TSW Overview,\u201d accessible in\u00a0<a href=\"https:\/\/www.youtube.com\/watch?v=LpEpjj5lqGM\">Spanish<\/a>\u00a0and\u00a0<a href=\"https:\/\/www.youtube.com\/watch?v=PAGbaGIkV6I\">Korean<\/a>.<\/li>\n<\/ul>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-2  el_after_av_one_full  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 data-fontsize=\"24\" data-lineheight=\"30\">Save the Date \u2013 ITSAN Spark Conference<\/h3>\n<p>ITSAN will host a virtual patient conference on\u00a0<strong>Saturday, May 15,<\/strong>\u00a02021.\u00a0 Please join us for a day of support and TSW Syndrome education.<br \/>\nSuccess stories and tips from medical providers for supporting physical and metal health during TSW Syndrome will be featured.<br \/>\nMore information coming soon!<\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-4  el_after_av_one_half  el_before_av_one_half  flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-eeb6f70c4d4f728b5b33992ef115041b\">\n.avia-image-container.av-av_image-eeb6f70c4d4f728b5b33992ef115041b img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-eeb6f70c4d4f728b5b33992ef115041b .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-eeb6f70c4d4f728b5b33992ef115041b av-styling- avia-align-center  avia-builder-el-5  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5632 avia-img-lazy-loading-not-5632 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf.png\" alt='' title=''  height=\"745\" width=\"1180\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf.png 1180w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf-300x189.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf-1030x650.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf-768x485.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf-705x445.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/79716094-8b79-4835-825f-8151f766d9bf-450x284.png 450w\" sizes=\"(max-width: 1180px) 100vw, 1180px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-6  el_after_av_one_half  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-d5ab3a2b4c9575f60aba256d9c083bcb\">\n.avia-image-container.av-av_image-d5ab3a2b4c9575f60aba256d9c083bcb img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-d5ab3a2b4c9575f60aba256d9c083bcb .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-d5ab3a2b4c9575f60aba256d9c083bcb av-styling- avia-align-center  avia-builder-el-7  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5633 avia-img-lazy-loading-not-5633 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c.jpg\" alt='' title='629960ff-add5-42a1-9bee-b4d98f633b9c'  height=\"1144\" width=\"1120\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c.jpg 1120w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c-294x300.jpg 294w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c-1008x1030.jpg 1008w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c-768x784.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c-36x36.jpg 36w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c-690x705.jpg 690w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/629960ff-add5-42a1-9bee-b4d98f633b9c-450x460.jpg 450w\" sizes=\"(max-width: 1120px) 100vw, 1120px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-8  el_after_av_one_half  el_before_av_one_half  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 data-fontsize=\"24\" data-lineheight=\"30\">Industry Collaboration &amp; Steroid Stewardship<\/h3>\n<p><strong>I<\/strong>TSAN was one of five patient advocacy groups to attend the first Patient-Focused Drug Development meeting with the FDA about eczema treatments in 2019.\u00a0 The report from this meeting called\u00a0<a href=\"https:\/\/www.itsan.org\/us\/more-than-skin-deep-voice-of-the-patient-report\/\">More Than Skin Deep<\/a>, led to an alignment of steroid stewardship missions with Allergy and Asthma Network (AAN). A survey was developed by ITSAN President Kathy Tullos and AAN\u2019s State Advocacy Project Manager, Kelly Barta (currently an ITSAN board member as well) to improve research &amp; treatment for skin issues, including safer steroid prescribing guidelines, and to inform about cumulative steroid load experienced by people in the eczema community.<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-10  el_after_av_one_half  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 class=\"title-heading-left\" data-fontsize=\"48\" data-lineheight=\"56\"><strong>Topical Steroid Withdrawal Syndrome in the News &amp; Community<\/strong><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-5634\" src=\"https:\/\/itsan.net\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-1030x809.jpg\" alt=\"\" width=\"1030\" height=\"809\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-1030x809.jpg 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-300x236.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-768x603.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-1536x1206.jpg 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-1500x1178.jpg 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-705x554.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81-450x353.jpg 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/2e27612d-d5ac-40e7-af12-ecb49d700e81.jpg 1574w\" sizes=\"auto, (max-width: 1030px) 100vw, 1030px\" \/><\/p>\n<\/div><\/section><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-12  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>Top Left: It takes courage every time a TSW warrior or caregiver speaks about their trauma. <\/strong>No one should know Topical Steroid Withdrawal Syndrome and no loved one should witness it. Thank you Jessica for sharing your story.\u00a0 <strong>Watch the 2 minute broadcast<\/strong> <a href=\"https:\/\/www.youtube.com\/watch?v=CMXm7dGNiSs\">here<\/a><strong>.<\/strong><\/p>\n<p><strong>Top Middle: ITSAN is working to petition for labeling changes on the drug insert for topical corticosteroids, <\/strong>and to connect patients with doctors who understand how to diagnose, treat, and ultimately prevent this debilitating disease. With safer topical corticosteroid labeling, potential side effects of overexposure to steroids will become well defined and ultimately prevented by medical professionals. <strong>Learn\u00a0<\/strong><a href=\"https:\/\/www.itsan.org\/us\/for-doctors\/#prevention\">more<\/a><strong>.<\/strong><\/p>\n<p><strong>Top Right: Briana Banos, the creator of Preventable: Protecting Our Largest Organ, recently shared a series of interviews with the stars of Preventable in a series called \u201cWhere Are They Now?\u201d ITSAN President\u00a0<\/strong><a href=\"https:\/\/www.youtube.com\/watch?v=JpziwW4tnNs&amp;t=246s\">Kathy Tullos<\/a>\u00a0and her husband Jason Tullos were among those interviewed and discussed their son\u2019s recovery from TSWS. Preventable\u2019s two year anniversary was March 22.\u00a0 Celebrate by visiting the <a href=\"https:\/\/www.youtube.com\/channel\/UCGul7qzTlVJ6fOfHKV2ao8A\">Preventable YouTube channel<\/a>\u00a0and sharing with others.<\/p>\n<p><strong>Bottom left: The voices of TSW warriors and caregivers are at the forefront of raising awareness of TSW Syndrome.\u00a0 <\/strong>ITSAN features warrior highlights including Melanie who is 7 years TSW, and shared her wisdom and strength in this\u00a0<a href=\"https:\/\/www.dailymail.co.uk\/health\/article-3937474\/Extreme-eczema-sufferer-looked-like-monster-quitting-30-year-steroid-cream-addiction-clear-skin-time-life.html\">Daily Mail article<\/a>.<\/p>\n<p><strong>Bottom middle: ITSAN maintains a list of TSWS supportive doctors recommended by members.\u00a0 <\/strong>If you are looking for a place to start, check the list in the Files section of the Facebook group: <a href=\"https:\/\/www.facebook.com\/groups\/ITSANSupport\/?ref=bookmarks\">ITSAN Topical Steroid Withdrawal Syndrome Support Group \u2013 Private Group<\/a><\/p>\n<p><strong>Bottom right:\u00a0<a href=\"https:\/\/www.instagram.com\/tsw_witnesses\/\">@tsw_witnesses<\/a>\u00a0highlights pictures and interviews with TSW warriors <\/strong>from around the world to raise awareness about TSW Syndrome.\u00a0 In February<a href=\"https:\/\/www.instagram.com\/tsw_witnesses\/\">@tsw_witnesses<\/a>\u00a0reached 100 voices from the TSW community!<\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-14  el_after_av_one_half  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-15  el_after_av_hr  el_before_av_one_third  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 data-fontsize=\"24\" data-lineheight=\"30\"><strong>Caregiver Support:\u00a0<\/strong><\/h3>\n<p><strong>ITSAN recognizes the need for mental health support for caregivers and warriors.\u00a0 See some recent tips below.\u00a0 Caregivers, find support\u00a0<a href=\"https:\/\/www.facebook.com\/groups\/TSACaregiversRock\/\">here<\/a>.<\/strong><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf av_one_third  avia-builder-el-17  el_after_av_one_full  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-db3f642457a00b3d5c40cc0904e7e66d\">\n.avia-image-container.av-av_image-db3f642457a00b3d5c40cc0904e7e66d img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-db3f642457a00b3d5c40cc0904e7e66d .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-db3f642457a00b3d5c40cc0904e7e66d av-styling- avia-align-center  avia-builder-el-18  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5635 avia-img-lazy-loading-not-5635 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.28.25-AM.png\" alt='' title=''  height=\"453\" width=\"594\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.28.25-AM.png 594w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.28.25-AM-300x229.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.28.25-AM-450x343.png 450w\" sizes=\"(max-width: 594px) 100vw, 594px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-19  el_after_av_one_third  el_before_av_one_third  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Be gentle on yourself. Every day your love, your strength and your instincts champion your child\u2019s recovery. Returning to health and balance comes with continuing to identify what your child needs, including supportive medical providers, understanding school providers, family and friends who rise to the opportunity to learn about Topical Steroid Withdrawal Syndrome and to stand with you. Believe in your child\u2019s potential to heal and believe in yourself. Take care of their parent, their caregiver, their hero. Self forgiveness supports physical and emotional healing for the entire family.<\/p>\n<p><strong>Read more\u00a0<\/strong><a href=\"https:\/\/www.instagram.com\/p\/CLjbAbWLCvy\/\">here.<\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf av_one_third  avia-builder-el-21  el_after_av_one_half  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-85eae09769891a8862b2f848028b20c8\">\n.avia-image-container.av-av_image-85eae09769891a8862b2f848028b20c8 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-85eae09769891a8862b2f848028b20c8 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-85eae09769891a8862b2f848028b20c8 av-styling- avia-align-center  avia-builder-el-22  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5636 avia-img-lazy-loading-not-5636 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.37.18-AM.png\" alt='' title=''  height=\"546\" width=\"593\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.37.18-AM.png 593w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.37.18-AM-300x276.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.37.18-AM-450x414.png 450w\" sizes=\"(max-width: 593px) 100vw, 593px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-23  el_after_av_one_third  el_before_av_one_third  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Imagine a team of guides that will stand with you as you support your child\u2019s recovery. Your guides might be a parent who has a child six months ahead of yours in their recovery from Topical Steroid Withdrawal Syndrome. Or six years.<\/p>\n<p>Ask for help with groceries. Ask for help with anything and everything. You will not look back and wish you didn\u2019t ask. You will look back at how you grew a safe, caring circle of support for your child and you during TSWS.<\/p>\n<p><strong>Read more\u00a0<\/strong><a href=\"https:\/\/www.instagram.com\/p\/CL9K_KirO5r\/\">here<\/a><strong>.<\/strong><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf av_one_third  avia-builder-el-25  el_after_av_one_half  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-a3b8a508c39fd56ac7c8479ed8fee6fb\">\n.avia-image-container.av-av_image-a3b8a508c39fd56ac7c8479ed8fee6fb img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-a3b8a508c39fd56ac7c8479ed8fee6fb .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-a3b8a508c39fd56ac7c8479ed8fee6fb av-styling- avia-align-center  avia-builder-el-26  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5637 avia-img-lazy-loading-not-5637 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.45.50-AM.png\" alt='' title=''  height=\"529\" width=\"592\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.45.50-AM.png 592w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.45.50-AM-300x268.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Screen-Shot-2021-03-24-at-8.45.50-AM-450x402.png 450w\" sizes=\"(max-width: 592px) 100vw, 592px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-27  el_after_av_one_third  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>When a medical provider is unable to recognize that the treatment for a child\u2019s eczema has worsened their condition resulting in TSWS and threatens to report a parent to Child Protective Services if they do not comply (despite parent\u2019s documentation that TCS is not treating and is now worsening their child\u2019s health), trust is broken\u2026Trust your instincts to continue to support your child\u2019s mental and physical health by identifying qualified medical providers to develop a patient centered care plan. Trust that global awareness is growing about TSWS and you will reach a place of health and healing for your child by continuing to ask questions, to seek appropriate care, to learn about TSWS and to tell your story. Change is coming.<\/p>\n<p><strong>Read more\u00a0<\/strong><a href=\"https:\/\/www.instagram.com\/p\/CMraZiYgrxe\/\">here<\/a><strong>.<\/strong><\/p>\n<\/div><\/section><\/div>\n<div  class='hr av-av_hr-0ff602b3e980a3377077ff3c1c834df6 hr-default  avia-builder-el-29  el_after_av_one_half  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-30  el_after_av_hr  el_before_av_two_fifth  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>Be an Advocate:<\/strong><strong>\u00a0<\/strong>TSW makes advocates out of all of us since the condition is not yet well known. Here are some ways you can help:<\/p>\n<p>Complete an\u00a0<strong>Adverse Drug Reaction Report\u00a0<\/strong>with the FDA: You can report adverse drug reactions or side effects to the FDA from anywhere in the world. But if outside the US, please also report to your country\u2019s equivalent to the FDA (Food and Drug Administration). The more places you report, the more your experience will be seen and heard. Report adverse effects\u00a0<a href=\"https:\/\/www.accessdata.fda.gov\/scripts\/medwatch\/index.cfm\">here<\/a>.<\/p>\n<p><strong>Donate:\u00a0<\/strong><br \/>\nITSAN runs on donations from you.\u00a0 Please help support the efforts of our community to drive awareness.\u00a0 Consider a Matching Donation from your workplace, or a monthly donation amount.\u00a0 If we had more funding we could do more.<\/p>\n<p><strong>Share Your Voice:<\/strong>\u00a0If ITSAN has helped you, please consider writing a review at Great Nonprofits so we stay\u00a0<a href=\"https:\/\/greatnonprofits.org\/org\/international-topical-steroid-awareness-network-itsan\">Top Rated for 202<\/a>1.<\/p>\n<p><strong>Share Your Story:\u00a0<\/strong>Thank you to every TSW warrior and caregiver for the courage to share your story, to raise awareness on the difference between Topical Steroid Withdrawal Syndrome and eczema, to promote TSWS prevention, early detection, accurate diagnosis &amp; proper treatment. Every story has the power to bring change.\u00a0 Share your story with us:\u00a0\u00a0<a href=\"mailto:info@itsan.org\">info@itsan.org<\/a><\/p>\n<p><strong>Thank you to our Sponsors<\/strong>: ITSAN now has 2 amazing sponsors! The generous giving of our sponsors allows us to do the important work of our mission \u2013 raising awareness of TSW and supporting all affected individuals.<\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_two_fifth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_two_fifth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_two_fifth-15d750bd1b332b34c6e70b077ebbccdf av_two_fifth  avia-builder-el-32  el_after_av_one_full  el_before_av_two_fifth  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-e19c7dd26d9ff6e06383bf3bbea63ae1\">\n.avia-image-container.av-av_image-e19c7dd26d9ff6e06383bf3bbea63ae1 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-e19c7dd26d9ff6e06383bf3bbea63ae1 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-e19c7dd26d9ff6e06383bf3bbea63ae1 av-styling- avia-align-center  avia-builder-el-33  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><a href=\"https:\/\/www.balmonds.com\/skin-care\/topical-steroid-withdrawal.list\" class='avia_image' target=\"_blank\" rel=\"noopener noreferrer\"><img decoding=\"async\" class='wp-image-184 avia-img-lazy-loading-not-184 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png\" alt='' title='Balmonds-logo-hi-res-green'  height=\"356\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png 1030w, 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id=\"style-css-av-av_two_fifth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_two_fifth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_two_fifth-c8fc129dc35fd1ae2a1e410224d39ea8 av_two_fifth  avia-builder-el-34  el_after_av_two_fifth  el_before_av_one_full  flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-2fcb17850b62e602fd14d5ceeafe10a1\">\n.avia-image-container.av-av_image-2fcb17850b62e602fd14d5ceeafe10a1 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-2fcb17850b62e602fd14d5ceeafe10a1 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-2fcb17850b62e602fd14d5ceeafe10a1 av-styling- avia-align-center  avia-builder-el-35  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><a href=\"https:\/\/yoronaturals.com\/?utm_source=ITSAN&amp;utm_medium=Email&amp;utm_campaign=ITSAN%20Newsletter\" class='avia_image' target=\"_blank\" rel=\"noopener noreferrer\"><img decoding=\"async\" class='wp-image-185 avia-img-lazy-loading-not-185 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web.jpg\" alt='' title='yoro_logo_orange_web'  height=\"226\" width=\"226\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web.jpg 226w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-80x80.jpg 80w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-36x36.jpg 36w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-180x180.jpg 180w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-120x120.jpg 120w\" sizes=\"(max-width: 226px) 100vw, 226px\" \/><\/a><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-36  el_after_av_two_fifth  avia-builder-el-last  first flex_column_div av-zero-column-padding  '     ><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":6185,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[25],"tags":[],"class_list":["post-5628","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5628","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=5628"}],"version-history":[{"count":8,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5628\/revisions"}],"predecessor-version":[{"id":11973,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5628\/revisions\/11973"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/6185"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=5628"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=5628"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=5628"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}