{"id":5837,"date":"2021-07-09T15:03:03","date_gmt":"2021-07-09T15:03:03","guid":{"rendered":"https:\/\/www.itsan.org\/us\/?p=5837"},"modified":"2025-08-14T14:22:55","modified_gmt":"2025-08-14T14:22:55","slug":"second-quarter-2021-newsletter","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2021\/07\/09\/second-quarter-2021-newsletter\/","title":{"rendered":"Second Quarter 2021 Newsletter"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-0  el_before_av_textblock  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><p>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-f5d679df43e3ab09fe0fb80784dc76b2\">\n.avia-image-container.av-av_image-f5d679df43e3ab09fe0fb80784dc76b2 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-f5d679df43e3ab09fe0fb80784dc76b2 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-f5d679df43e3ab09fe0fb80784dc76b2 av-styling- avia-align-center  avia-builder-el-1  el_before_av_hr  avia-builder-el-first '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5630 avia-img-lazy-loading-not-5630 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451.png\" alt='' title=''  height=\"145\" width=\"500\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451.png 500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-300x87.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-495x145.png 495w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-450x131.png 450w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/><\/div><\/div><\/div><br \/>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-4474f20d2389e2e5ecf918a02da5132e\">\n#top .hr.hr-invisible.av-av_hr-4474f20d2389e2e5ecf918a02da5132e{\nheight:50px;\n}\n<\/style>\n<div  class='hr av-av_hr-4474f20d2389e2e5ecf918a02da5132e hr-invisible  avia-builder-el-2  el_after_av_image  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><br \/>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">Second Quarter 2021 News<\/strong><\/p>\n<\/div><\/section><\/p><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p dir=\"ltr\">In this issue we will highlight advocacy work happening worldwide and the potential for local, national and global TSWS awareness to bring accurate diagnosis, early detection, proper treatment and ultimately prevention.\u00a0 Raising awareness of Topical Steroid Withdrawal Syndrome to support affected individuals, caregivers and healthcare providers is ITSAN\u2019s mission.<\/p>\n<p dir=\"ltr\">In May\u00a0ITSAN hosted the\u00a0<u><strong>Spark Virtual Patient Conference\u00a0<\/strong><\/u>with over 250 registrants representing 20 countries!\u00a0 Sessions focused on TSW advocacy, integrative treatments, mental health support, mindfulness and TSW success stories. Breakout sessions brought together TSW caregivers, men and women experiencing TSW and a special cartooning session for TSW warrior kids and their siblings.<\/p>\n<p dir=\"ltr\">Watch the full conference\u00a0<a href=\"https:\/\/youtu.be\/L-rCVYddrKQ\" target=\"_blank\" rel=\"noopener\">here.<\/a> (Breakout sessions were not recorded to protect the privacy of attendees)<\/p>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-74f5611a7fc848394737b4b2a9a315fa\">\n.avia-image-container.av-av_image-74f5611a7fc848394737b4b2a9a315fa img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-74f5611a7fc848394737b4b2a9a315fa .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-74f5611a7fc848394737b4b2a9a315fa av-styling- avia-align-center  avia-builder-el-5  el_after_av_textblock  el_before_av_textblock '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5838 avia-img-lazy-loading-not-5838 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark-1030x513.jpg\" alt='' title=''  height=\"513\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark-1030x513.jpg 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark-300x150.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark-768x383.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark-705x351.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark-450x224.jpg 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/spark.jpg 1200w\" sizes=\"(max-width: 1030px) 100vw, 1030px\" \/><\/div><\/div><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p dir=\"ltr\">Thank you to those who donated towards the Spark Conference! With your support and a Member Impact Fund grant from The International Alliance of Dermatology Patient Organizations (IADPO), we were able to upgrade our Zoom and cloud storage and hire a tech expert to help us reach over 20 countries. The conference funds raised did not cover all of the above expenses so if you are able to donate &#8211; thank you!<\/p>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">We need donations in order to operate.\u00a0 Please donate via<\/strong><strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=11299063b4&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D11299063b4%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNHQdEJncW5J5dWc4RZw8IZcjkfDZA\">ITSAN\u2019s PayPal Giving Fund<\/a>.\u00a0<\/strong><\/p>\n<p dir=\"ltr\">We will continue fundraising for projects coming up including updating ITSAN\u2019s website and an educational brochure for patients to share with their doctors. Every small donation adds up to support ITSAN\u2019s mission to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. Thank you to our donors past, present and future!<\/p>\n<p dir=\"ltr\">During the Spark conference attendees were asked the following poll questions.\u00a0 Results reflect the critical need for supportive medical and mental health care during Topical Steroid Withdrawal Syndrome.<\/p>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-903e961047bba61f387df72ce4667d98\">\n.avia-image-container.av-av_image-903e961047bba61f387df72ce4667d98 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-903e961047bba61f387df72ce4667d98 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-903e961047bba61f387df72ce4667d98 av-styling- avia-align-center  avia-builder-el-7  el_after_av_textblock  el_before_av_hr '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5841 avia-img-lazy-loading-not-5841 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-1030x431.jpg\" alt='' title=''  height=\"431\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-1030x431.jpg 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-300x125.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-768x321.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-1536x642.jpg 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-1500x627.jpg 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-705x295.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte-450x188.jpg 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/charte.jpg 1753w\" sizes=\"(max-width: 1030px) 100vw, 1030px\" \/><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-4474f20d2389e2e5ecf918a02da5132e\">\n#top .hr.hr-invisible.av-av_hr-4474f20d2389e2e5ecf918a02da5132e{\nheight:50px;\n}\n<\/style>\n<div  class='hr av-av_hr-4474f20d2389e2e5ecf918a02da5132e hr-invisible  avia-builder-el-8  el_after_av_image  el_before_av_one_half '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-9  el_after_av_hr  el_before_av_one_half  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">When patients and medical providers advocate together:<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-5843 alignleft\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM.png\" alt=\"\" width=\"432\" height=\"432\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM.png 432w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM-300x300.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM-80x80.png 80w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM-36x36.png 36w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM-180x180.png 180w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-23-at-3.33.44-PM-120x120.png 120w\" sizes=\"auto, (max-width: 432px) 100vw, 432px\" \/><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-11  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><p>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-d50449065512dfb87382cb0128eaa335\">\n#top .hr.hr-invisible.av-av_hr-d50449065512dfb87382cb0128eaa335{\nheight:100px;\n}\n<\/style>\n<div  class='hr av-av_hr-d50449065512dfb87382cb0128eaa335 hr-invisible  avia-builder-el-12  el_before_av_textblock  avia-builder-el-first '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><br \/>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">\u201cI burst into tears and told her I actually think that is what&#8217;s happened to me too. This was Manchester UK tonight at 7pm. Word is getting out guys and it\u2019s given me the strength to continue. Not sure how but I have to keep on fighting.&#8221;<\/strong><\/p>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">\u00a0-Joely Persse, 4 months TSW. Read<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=9167fcb1cd&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D9167fcb1cd%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNHNHovR0hmie2nahE-exXc2-2FlAQ\">\u00a0more<\/a>.<\/strong><\/p>\n<\/div><\/section><\/p><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-4474f20d2389e2e5ecf918a02da5132e\">\n#top .hr.hr-invisible.av-av_hr-4474f20d2389e2e5ecf918a02da5132e{\nheight:50px;\n}\n<\/style>\n<div  class='hr av-av_hr-4474f20d2389e2e5ecf918a02da5132e hr-invisible  avia-builder-el-14  el_after_av_one_half  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-15  el_after_av_hr  el_before_av_one_full  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">ITSAN Working for Change\u00a0<\/strong><\/h3>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">Presenting for the Dermatology Nurses\u2019 Association &#8211; April 2021<\/strong><\/p>\n<p dir=\"ltr\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-5845\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/pasted-image-0.png\" alt=\"\" width=\"111\" height=\"65\" \/><\/p>\n<p dir=\"ltr\" role=\"presentation\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\"><a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=c16332f70c&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Dc16332f70c%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNFzPUe1RtBXLxBKjCIuDb_VCyD_JA\">Kathryn Tullos<\/a>\u00a0<\/strong>and ITSAN Treasurer Jodie Ohr presented on \u201cRaising Awareness of Topical Steroid Withdrawal Syndrome: Patient Impact and Caregiver Responsibility\u201d at the<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=3d6927ec50&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D3d6927ec50%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNE1KiJtxmWrFE9sOM6OV7CshXqWcQ\">Dermatology Nurses&#8217; Association\u00a0<\/a><\/strong>Virtual Convention on April 21, 2021. It was attended by nearly 100 nursing professionals representing dermatology clinics across the US &#8211; Registered Nurses, Advanced Practice Nurses and Nurse Practitioners. We received excellent feedback and were asked engaging questions. They were really interested to learn more and be better able to help TSWS patients. A great event and victory for TSW Syndrome awareness!\u00a0 Learn more<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=38b2319b0d&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D38b2319b0d%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNGSiIvemfeb8ZwRQHFl4QCz_WbjyQ\">here<\/a>.\u00a0<\/strong><\/p>\n<h3 dir=\"ltr\" role=\"presentation\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">Steroid Stewardship Survey Project\u00a0<\/strong><\/h3>\n<p dir=\"ltr\">ITSAN President Kathryn Tullos &amp; Board Member Kelly Barta are working with<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=aa64cb9580&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Daa64cb9580%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNEqp7dzbYDa2sbMGyUmI_1buiaECQ\">Allergy &amp; Asthma Network<\/a>\u00a0<\/strong>(AAN) on a collaboration project for<strong><a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=616548997b&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D616548997b%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNGBOhDDg_nE-zrMgBwHyOZDSOD1Qw\">\u00a0steroid stewardship<\/a>,\u00a0<\/strong>including our joint survey conducted last Fall. Thank you all who completed the survey! A preliminary report of results has been completed. We have been in contact with 3 doctors who are excited to team up with us and publish the findings in a scholarly journal. They believe the survey results have enough information to publish 5 or 6 papers! This is great news for raising awareness within the medical community. The initial paper would focus on the over-exposure of Atopic Dermatitis\/Eczema patients to steroids of all types: topical, oral, injected, inhaled, nasal sprays, eye drops and ear drops. Our goal is that this will lead to more appropriate prescribing and monitoring practices of steroids of all kinds &#8211; especially when they are prescribed at the same time.<\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-17  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 dir=\"ltr\">\u00a0<strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">\u201cAdvocating for Change\u201d webinar:\u00a0<\/strong><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-large wp-image-5846\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-1030x565.png\" alt=\"\" width=\"1030\" height=\"565\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-1030x565.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-300x165.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-768x421.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-1536x843.png 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-1500x823.png 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-705x387.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM-450x247.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screenshot-2021-06-29-11.08.11-AM.png 1808w\" sizes=\"auto, (max-width: 1030px) 100vw, 1030px\" \/><\/p>\n<p>In June, ITSAN Board Members, Jodie Ohr and Kelly Barta hosted a webinar as a follow-up to their presentation on advocacy at ITSAN&#8217;s conference in May. They presented in more detail on how you can get involved to make a difference not only for yourself, but also for the countless others who are either facing TSW or need to be aware that it exists so that it can be prevented. Learn more<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=cf10fab6f9&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Dcf10fab6f9%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394531000&amp;usg=AFQjCNETv1kpiTrUO3jZ9_q1CBimySyqLw\">here<\/a>.<\/strong><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-19  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 dir=\"ltr\"><strong><span id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">TSWS<\/span>\u00a0in the News &amp; Community\u00a0<\/strong><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-5848\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/kids.jpg\" alt=\"\" width=\"1016\" height=\"295\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/kids.jpg 1016w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/kids-300x87.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/kids-768x223.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/kids-705x205.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/kids-450x131.jpg 450w\" sizes=\"auto, (max-width: 1016px) 100vw, 1016px\" \/><\/p>\n<p dir=\"ltr\" role=\"presentation\">\u201cChase is planning a fun field day event to raise money and awareness for ITSAN&#8230;Kids Boost is a nonprofit organization designed to empower kids to give back to the world by using their gifts, talents and passions.\u201d -KidsBoost<\/p>\n<p>\u00a0\u201cWhy I want to raise money for ITSAN&#8230;the reason I chose ITSAN is because they help people with skin conditions like I had.\u201d &#8211; Chase, 12 years old\u00a0.\u00a0Learn more about Chase\u2019s inspirational story and his amazing fundraiser<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=c19ebdc487&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Dc19ebdc487%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNGX_cxgmlG6FOD_zgomwopHYlFXKA\">\u00a0here.<\/a><\/p>\n<p>Dr. Heba Khaled and translators who have helped make the comprehensive video \u201cA TSW Overview,\u201d accessible in\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=e202c066df&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3De202c066df%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNGT7U3QAh_9fKnUXc5qSDrv_JeVcQ\">French<\/a>.<\/p>\n<p dir=\"ltr\" role=\"presentation\"><u>Shout out to ITSAN Co-Founder and former President, Kelly Parker Palace on the launch of her book, &#8220;Take Your Mark, Lead! 10 Ways to Lead Yourself and Others Like a Champion<\/u>.&#8221; Kelly&#8217;s book is available on Amazon and she will share a portion of the proceeds with ITSAN. Please select International Topical Steroid Awareness Network as your favorite charity on\u00a0<strong><a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=751c62334a&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D751c62334a%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNHsI1nqKccpM-ZE1jQMC0jjb_N6aw\">Amazon Smile<\/a>\u00a0(U.S. only).\u00a0<\/strong><\/p>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\"><em>*Worth Remembering*\u00a0 \u00a0\u201cYour story and your experience can not only change your local community it can change your state, your province, your country, it can eventually change the world if you are willing to show up.\u201d &#8211; &#8211;<\/em><\/strong><em>\u00a0ITSAN\u2019s Spark Conference &#8211; Kelly Barta on Advocacy.<\/em><\/p>\n<p dir=\"ltr\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-5852\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-25-at-5.32.42-PM.png\" alt=\"\" width=\"878\" height=\"545\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-25-at-5.32.42-PM.png 878w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-25-at-5.32.42-PM-300x186.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-25-at-5.32.42-PM-768x477.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-25-at-5.32.42-PM-705x438.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/Screen-Shot-2021-06-25-at-5.32.42-PM-450x279.png 450w\" sizes=\"auto, (max-width: 878px) 100vw, 878px\" \/><\/p>\n<p dir=\"ltr\">\u201cA lot of times people say, why don\u2019t my doctors know about this?\u00a0 Why isn\u2019t change happening?\u00a0 How come we\u2019re not getting the support that we need?\u00a0 And a lot of times, it\u2019s good to take a step back and realize that there are certain steps that have to take place before your doctor is actually going to be aware of Topical Steroid Withdrawal &#8212; before they\u2019re willing to treat it.\u00a0 Just because if they\u2019ve been educated differently, if they don\u2019t see any scientific data to back it up, it\u2019s very hard for them to just change that mindset.<\/p>\n<p dir=\"ltr\">So as we work together with ITSAN, we get a lot of questions and we just kind of wanted to highlight what are some of the steps that have to take place for this tide to change. And for everyone to acknowledge this as a household word, not just the general public, but physicians as well so that we\u2019re getting the support that we need and so that this doesn\u2019t keep on happening. Obviously the steps here are general awareness. So if you\u2019re talking to your friends and family, we need to be talking to our doctors and the general public. But we also need to get data to support all of the anecdotal stories that we\u2019re bringing to the table.<\/p>\n<p dir=\"ltr\">So a lot of times people can say, well that\u2019s just an anomaly or that\u2019s just you, or maybe that\u2019s just worsening eczema you don\u2019t know what you\u2019re talking about.\u00a0 It\u2019s so important to have that scientific data which is one of the reasons it\u2019s so important to be involved in research and surveys. But then we also need to get a diagnostic code so that doctors can actually diagnose this and send these things to insurance companies so people can get covered by their insurance. That\u2019s super important &#8211; a diagnostic code. But just like what Dr. Sheary was saying we still don\u2019t even have the criteria completely defined yet, so these are all steps that we\u2019re working toward.<\/p>\n<p dir=\"ltr\">Once we get that code, then people can actually be diagnosed and they can be covered. We need a public health advisory to physicians and to patients issued by FDA, our regulating agency and other regulating agencies around the world, so that physicians are aware of it and people are aware of it.\u00a0 We need the product label changes on the steroids themselves so that when people are looking at it they can realize, okay you know this isn\u2019t right, it says to use 2-4 weeks but yet I\u2019m being prescribed this for 10, 20, 50 years and there\u2019s no warnings on it.\u00a0 If the warnings are there, if there are better guidelines on it we can actually show our doctors, okay this isn\u2019t correct and they can go and reference it as well.\u00a0 But because it is so ambiguous there\u2019s a real problem there.\u00a0 And then obviously physician education&#8230;for the whole system to change it\u2019s going to take a little while but all of these things play a part in that, so that\u2019s what we wanted to talk about today.\u00a0 How can you get involved and start making that change?\u201d<\/p>\n<p dir=\"ltr\">-Kelly Barta, ITSAN Board Member &amp; State Advocacy, Special Project Manager at Allergy &amp; Asthma Network, and<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=f9963f8ed6&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Df9963f8ed6%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNHOcf3rv6y-aUdgGrFrdQtLGI0coQ\">President of the Coalition of Skin Diseases\u00a0<\/a><\/strong><\/p>\n<\/div><\/section><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-21  el_after_av_one_full  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3 dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">`Highlighting \u2018Scratch That\u2019 UK\u2019s Advocacy Work<\/strong><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-5853\" src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/sacra.jpg\" alt=\"\" width=\"585\" height=\"142\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/sacra.jpg 585w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/sacra-300x73.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/07\/sacra-450x109.jpg 450w\" sizes=\"auto, (max-width: 585px) 100vw, 585px\" \/><\/p>\n<p>Are you a TSW sufferer in the UK? Scratch That UK, a community and awareness campaign for Topical Steroid Withdrawal Syndrome is rallying TSW sufferers in the UK to report adverse effects of topical steroids to the MHRA (Medicines and Healthcare products Regulatory Agency).\u00a0 Every Yellow Card submitted to the MHRA has helped make a difference.\u00a0 Read more from<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=79f275fbf1&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D79f275fbf1%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNHBph6ElGFMnVRKw0q6UiGICq5l5A\">Scratch That\u00a0<\/a><\/strong><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">\u201c<\/strong>UK!<\/p>\n<p dir=\"ltr\">It\u2019s a busy time for Scratch That! We have had a response from the Medicines and Healthcare products Regulatory Agency (MHRA) recognising skin reactions from the use of topical steroids. MHRA are considering whether to make changes to the wording on patient information leaflets of steroid products. They will then work with experts and patient representatives to communicate these changes to healthcare professionals through national Drug Safety Updates. There is still a long way to go in terms of full recognition of the reality of this condition but these steps are critical.<\/p>\n<p dir=\"ltr\">We have also provided a letter template for people to use to write to their Member of Parliament (MP) to ask for recognition of TSW by the government and the NHS and calling for research into the condition with a view to change the way that topical steroids are prescribed and monitored during use and withdrawal.<\/p>\n<p dir=\"ltr\">We recently met with the Eczema Care Online (ECO) team, made up of researchers at Nottingham University. They heard from members of the TSW community about our concerns around topical steroids being considered \u2018safe\u2019 and have agreed that research into the condition is needed. Scratch That will continue to engage with ECO researchers to\u00a0 advocate for safe use of topical steroids in eczema.<\/p>\n<p dir=\"ltr\">We continue to work towards getting our voices heard and making change. We know it will be a long road but we believe we are starting to be included in the conversation about topical steroids.\u201d<\/p>\n<p dir=\"ltr\">Some Top TSW Tips from Scratch That UK:<\/p>\n<ul dir=\"ltr\">\n<li>Ice packs!<\/li>\n<li>Keep mobile as much as possible<\/li>\n<li>Tell friends and family about what you are going through<\/li>\n<li>Look after your mental health with positivity, mindfulness and counseling<\/li>\n<li>Fake nails or keep them short and filed<\/li>\n<li>Try to connect to people in the community on a personal basis if possible, rather than taking in every bit of advice out there<\/li>\n<\/ul>\n<p>An important way YOU can help is by reporting adverse effects and side effects to steroids to the FDA (Food and Drug Administration). You can report to the FDA from anywhere in the world. If outside the US, please also report to your country\u2019s equivalent to the FDA.\u00a0 Report to the FDA<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=81213120d5&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D81213120d5%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNEebxo-o-FW0WKuzFLuzsPkcqfQIg\">here.<\/a>\u00a0<\/strong>If you are in the UK submit a Yellow Card repor<strong>t\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=56994179b5&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D56994179b5%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNHKUBBMabVIfikaHCjEtBb5d0fbfg\">here<\/a>.\u00a0<\/strong><\/p>\n<p dir=\"ltr\">For more about Scratch That UK, including a guide to writing your Member of Parliament<strong>:\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=c3f24c00ba&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Dc3f24c00ba%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNGRMHoGrE1LGtbNVRQl_R5ifDOpPA\">www.scratchthat.org.uk<\/a><\/strong><\/p>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">Instagram: @scratchthat<\/strong><\/p>\n<h3 dir=\"ltr\"><strong>You Are an Activist\u00a0<\/strong><\/h3>\n<p dir=\"ltr\">TSW makes advocates out of all of us since the condition is not yet well known. Here are some ways you can help:<\/p>\n<p dir=\"ltr\">Complete an Adverse Drug Reaction Report with the FDA: You can report adverse drug reactions or side effects to the FDA from anywhere in the world. But if outside the US, please also report to your country&#8217;s equivalent to the FDA (Food and Drug Administration). The more places you report, the more your experience will be seen and heard. Report adverse effects\u00a0<strong><a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=d6f264a286&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Dd6f264a286%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNGOQ2RgQ8ZWV9a3dLT13vNObNedYw\">here<\/a>.\u00a0<\/strong><\/p>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\"><a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=09a4f5b2eb&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D09a4f5b2eb%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNErJRH9YkrvBuZckdpsnSyjRPAM0A\">Donate<\/a><\/strong><\/p>\n<p dir=\"ltr\">Share Your Voice: If ITSAN has helped you, please consider writing a review at Great Nonprofits so we stay<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=c6b88e8586&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3Dc6b88e8586%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNG1_T6RGxHFtl0eglroN7yC7Aonpg\">Top Rated for 2021.<\/a>\u00a0<\/strong><\/p>\n<p dir=\"ltr\">Share Your Story: Thank you to every TSW warrior and caregiver for the courage to share your story and pictures, to raise awareness on the difference between TSWS and eczema, to promote prevention, early detection, accurate diagnosis &amp; proper treatment. Every story has the power to bring change.\u00a0 Share your story with us:\u00a0<strong>\u00a0<a href=\"mailto:info@itsan.org\" target=\"_blank\" rel=\"noopener\">info@itsan.org<\/a><\/strong><\/p>\n<p dir=\"ltr\"><strong id=\"m_-83843965710230406m_-9145123047885080899m_1219520439879095656docs-internal-guid-ef69af72-7fff-090b-e711-48aa2f6c12fa\">Thank you to our Sponsors!\u00a0 Please consider supporting them.\u00a0 The generous giving of our sponsors allows us to do the important work of our mission &#8211; raising awareness of TSW and supporting all affected individuals.\u00a0<\/strong><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-15d750bd1b332b34c6e70b077ebbccdf av_one_half  avia-builder-el-23 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noreferrer\"><img decoding=\"async\" class='wp-image-184 avia-img-lazy-loading-not-184 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png\" alt='' title='Balmonds-logo-hi-res-green'  height=\"356\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-300x104.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-768x265.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1536x531.png 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1500x518.png 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-705x244.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-450x156.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green.png 1600w\" sizes=\"(max-width: 1030px) 100vw, 1030px\" \/><\/a><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-25  el_after_av_one_half  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-9fc5b374a43f509e4c0d61374861e915\">\n.avia-image-container.av-av_image-9fc5b374a43f509e4c0d61374861e915 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-9fc5b374a43f509e4c0d61374861e915 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-9fc5b374a43f509e4c0d61374861e915 av-styling- avia-align-center  avia-builder-el-26  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><a href=\"https:\/\/yoronaturals.com\/?utm_source=ITSAN&amp;utm_medium=Email&amp;utm_campaign=ITSAN%20Newsletter&amp;mc_cid=a6e1aacb95&amp;mc_eid=b4fb71ede7\" class='avia_image' target=\"_blank\" rel=\"noopener noreferrer\"><img decoding=\"async\" class='wp-image-185 avia-img-lazy-loading-not-185 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web.jpg\" alt='' title='yoro_logo_orange_web'  height=\"226\" width=\"226\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web.jpg 226w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-80x80.jpg 80w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-36x36.jpg 36w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-180x180.jpg 180w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-120x120.jpg 120w\" sizes=\"(max-width: 226px) 100vw, 226px\" \/><\/a><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-fbebcb4fe7f7f93a621d8b6783460008\">\n#top .hr.hr-invisible.av-av_hr-fbebcb4fe7f7f93a621d8b6783460008{\nheight:30px;\n}\n<\/style>\n<div  class='hr av-av_hr-fbebcb4fe7f7f93a621d8b6783460008 hr-invisible  avia-builder-el-27  el_after_av_one_half  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p dir=\"ltr\">\u00a0If you would like to become a sponsor, or know someone who would, please email or pass on our contact information &#8211;<strong>\u00a0<a href=\"mailto:info@itsan.org\" target=\"_blank\" rel=\"noopener\">info@itsan.org<\/a>\u00a0<\/strong><\/p>\n<p dir=\"ltr\">And THANK YOU! A heartfelt thank you to all of our donors whose generosity has allowed us to do this important work.\u00a0 No one should go through this debilitating condition alone or without proper medical support. Without your support, we could not have grown and taken giant leaps in building bridges with the medical community. Together we can raise awareness and prevent this condition for others in the future. Please donate on our\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=6321be2e69&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D6321be2e69%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNEscnv3YpWa-EwtLDf5VReDXS5qiQ\">website<\/a>\u00a0or through our\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=e9d77efd75&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3De9d77efd75%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNH69bqOuCWdtprHfP6lNOSq6rtxJw\">PayPal Giving Fund<\/a>.\u00a0 Remember in the US, you can donate with every AMAZON purchase on<strong>\u00a0<a href=\"https:\/\/itsan.us7.list-manage.com\/track\/click?u=fa611379d0120776a4a8fe090&amp;id=62a5c77cb2&amp;e=b4fb71ede7\" target=\"_blank\" rel=\"noopener\" data-saferedirecturl=\"https:\/\/www.google.com\/url?q=https:\/\/itsan.us7.list-manage.com\/track\/click?u%3Dfa611379d0120776a4a8fe090%26id%3D62a5c77cb2%26e%3Db4fb71ede7&amp;source=gmail&amp;ust=1625924394532000&amp;usg=AFQjCNFSfJfn68taZGnTMV54mjcAWJbrFg\">AmazonSmile<\/a>.\u00a0<\/strong>Choose International Topical Steroid Awareness Network as your charity.<\/p>\n<p dir=\"ltr\">Many employers will also match funds, which ITSAN qualifies for using Tax ID 45-4556484 and address P.O. Box 303, Dacula, GA 30019.\u00a0 For help contact Jodie Ohr at<strong>\u00a0<a href=\"mailto:johr@itsan.org\" target=\"_blank\" rel=\"noopener\">johr@itsan.org<\/a>.\u00a0<\/strong><\/p>\n<p dir=\"ltr\">Hang in there!<\/p>\n<\/div><\/section>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":6187,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[25],"tags":[],"class_list":["post-5837","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5837","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=5837"}],"version-history":[{"count":15,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5837\/revisions"}],"predecessor-version":[{"id":5988,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5837\/revisions\/5988"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/6187"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=5837"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=5837"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=5837"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}