{"id":5930,"date":"2021-10-19T15:07:20","date_gmt":"2021-10-19T15:07:20","guid":{"rendered":"https:\/\/www.itsan.org\/us\/?p=5930"},"modified":"2025-08-14T14:22:55","modified_gmt":"2025-08-14T14:22:55","slug":"itsans-website-an-introduction","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2021\/10\/19\/itsans-website-an-introduction\/","title":{"rendered":"ITSAN\u2019s Website &#8211; An Introduction"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-0  el_before_av_three_fourth  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-d8866aee26ecd4cdd5d5ad4579a5a24d\">\n#top .av-special-heading.av-av_heading-d8866aee26ecd4cdd5d5ad4579a5a24d{\npadding-bottom:10px;\n}\nbody .av-special-heading.av-av_heading-d8866aee26ecd4cdd5d5ad4579a5a24d .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-d8866aee26ecd4cdd5d5ad4579a5a24d .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-d8866aee26ecd4cdd5d5ad4579a5a24d av-special-heading-h3  avia-builder-el-1  avia-builder-el-no-sibling '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >ITSAN\u2019s Website &#8211; An Introduction<\/h3><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_three_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fourth-15d750bd1b332b34c6e70b077ebbccdf av_three_fourth  avia-builder-el-2  el_after_av_one_full  el_before_av_one_fourth  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">ITSAN is the only nonprofit in the world supporting, advocating, and educating about Topical Steroid Withdrawal Syndrome for a global community. ITSAN\u2019s website was first launched in July 2009 by Kelly Palace as AddictedSkin.com based on her personal experience suffering from Topical Steroid Withdrawal Syndrome. The website featured medical articles on Topical Steroid Addiction and Withdrawal and provided an online support group for people experiencing TSWS. In January 2012 Palace changed AddictedSkin.com to ITSAN.org and filed for nonprofit status with Dr. Marvin Rapaport as co-founder.\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">ITSAN was granted 501(c)(3) nonprofit status in February 2012. Dr. Rapaport left ITSAN in June 2013 and Palace continued as ITSAN President until January 2015. Kathryn Tullos joined ITSAN\u2019s Board in 2015 and became ITSAN\u2019s President in October 2019. Tullos, a nurse and parent caregiver advocate, wanted to provide an informational resource that was not available when her son suffered through Topical Steroid Withdrawal. She helped write and relaunch the website in 2015.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The purpose of ITSAN\u2019s website is to advocate, educate, raise awareness and provide support for individuals living with eczema and Topical Steroid Withdrawal Syndrome. ITSAN.org provides coping strategies, peer reviewed medical publications, patient stories, photos and ultimately a place to learn about the preventable, iatrogenic condition Topical Steroid Withdrawal Syndrome.\u00a0\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/www.itsan.org\/us\/\"><b>Finding Information &#8211; Landing Page<\/b><\/a><\/p>\n<p><span style=\"font-weight: 400;\">You may be a medical provider seeking more information about TSW Syndrome, or you may be a sufferer or caregiver to someone experiencing TSWS. We appreciate that you are seeking more information. When you arrive at the Landing Page you will find the option to pursue six topics featured in the white banner at the top of the page:\u00a0\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/what-is-tsw-syndrome\/\"><b>What is TSWS?<\/b><\/a>\u00a0&#8211; provides information explaining Topical Steroid Withdrawal Syndrome and the acronyms RSS, TSA, TSW. Learn about common symptoms of TSW Syndrome before and after discontinuing topical steroid use, treatment options and recovery time period.<\/span><\/li>\n<\/ul>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/topical-steroids-101\/\"><b>Topical Steroids 101<\/b><\/a>\u00a0&#8211; defines topical steroids, their use and how they work. This section provides factors influencing absorption of topical steroids, examples of classification by potency and side effects. Sidebars on this page provide more detailed information.<\/span><\/li>\n<\/ul>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/coping-with-tsw\/\"><b>Coping with TSWS<\/b><\/a>\u00a0&#8211; based on firsthand experience of thousands of TSW sufferers you will find, <\/span><i><span style=\"font-weight: 400;\">What to Expect<\/span><\/i><span style=\"font-weight: 400;\">, <\/span><i><span style=\"font-weight: 400;\">Dealing with the Itch<\/span><\/i><span style=\"font-weight: 400;\"> and a <\/span><i><span style=\"font-weight: 400;\">Survival Guide<\/span><\/i><span style=\"font-weight: 400;\">.<\/span><\/li>\n<\/ul>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/resources\/\"><b>Resources<\/b><\/a>\u00a0&#8211; a selection of medical articles and peer reviewed research describing clinical presentation of Topical Steroid Addiction and Withdrawal. Sidebars on this page include ITSAN\u2019s printable Brochure and TSW videos. There is also a link to connect and support ITSAN by shopping Amazon Smile.<\/span><\/li>\n<\/ul>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/for-doctors\/\"><b>For Doctors<\/b><\/a>\u00a0&#8211; a resource for healthcare providers from TSW experienced doctors and researchers offering medical literature, including TSWS presentation and treatment.\u00a0 Images of children and adults who recovered from Topical Steroid Addiction and Withdrawal after ceasing use of topical steroids are included in this section.<\/span><\/li>\n<\/ul>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/stories-and-photos\/\"><b>Stories and Photos<\/b><\/a>\u00a0&#8211; Many individuals who visit ITSAN.org consider this section their \u201cAh-ha\u201d moment when they see images and read accounts of others who experienced TSWS. This section represents potentially millions of sufferers who were treated with increasingly potent topical steroids, and who developed symptoms of Topical Steroid Addiction and Topical Steroid Withdrawal upon cessation of topical steroids.<\/span><\/li>\n<\/ul>\n<p><b>Connecting With Others &#8211; Social Media<\/b><span style=\"font-weight: 400;\">\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Further up on the Landing Page is a blue banner with icons linked to ITSAN\u2019s social media sites:\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/www.facebook.com\/InternationalTopicalSteroidAwarenessNetworkITSAN\"><b>Facebook<\/b><\/a><span style=\"font-weight: 400;\"> &#8211; Find ITSAN &#8211; Topical Steroid Withdrawal Syndrome Support public page.\u00a0 Here you can click on \u201cMore\u201d and then \u201cGroup\u201d to join <a href=\"https:\/\/www.facebook.com\/groups\/ITSANSupport\">ITSAN Topical Steroid Withdrawal Syndrome Support Group &#8211; Private Group<\/a> <\/span><span style=\"font-weight: 400;\">and connect with over 12K TSW sufferers and caregivers. ITSAN maintains a list of TSWS supportive doctors recommended by members. <\/span><span style=\"font-weight: 400;\">ITSAN&#8217;s list of TSWS supportive doctors is available under Files in the private group. <\/span><span style=\"font-weight: 400;\">ITSAN does not diagnose or recommend treatment or medication.<\/span><span style=\"font-weight: 400;\">\u00a0\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/www.instagram.com\/itsan.nonprofit\/\"><b>Instagram<\/b><\/a><span style=\"font-weight: 400;\"> &#8211; Find support, information, advocacy efforts, TSW warrior highlights and more!<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/twitter.com\/itsannonprofit?lang=en\"><b>Twitter<\/b><\/a><span style=\"font-weight: 400;\"> &#8211; Find TSW tips, research and news.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/www.youtube.com\/channel\/UCPpdtKm5q4wILIw-PnGbZQg\"><b>YouTube<\/b><\/a><span style=\"font-weight: 400;\"> &#8211; Find strategies for coping with the mental and physical toll of TSW, learn about ITSAN\u2019s advocacy work and discover TSW related webinars.<\/span><\/li>\n<\/ul>\n<p><b>Raising Awareness &#8211; More About ITSAN<\/b><\/p>\n<p><span style=\"font-weight: 400;\">You will find four additional sections in the top blue banner specific to News, the Board, Outreach and Fundraising:\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/news\/\"><b>News<\/b><\/a>\u00a0&#8211; Catch up with ITSAN\u2019s newsletter, explore the \u201cMore than Skin Deep\u201d Voice of the Patient Report, link to the documentary <\/span><a href=\"https:\/\/www.youtube.com\/watch?v=RMbtf3C8BZk&amp;t=2s\"><span style=\"font-weight: 400;\">\u201cPreventable: Protecting Our Largest Organ,\u201d<\/span><\/a><span style=\"font-weight: 400;\"> and find ITSAN\u2019s Year End Report.<\/span><\/li>\n<li aria-level=\"1\"><b><a href=\"https:\/\/www.itsan.org\/us\/blog\/\">Blog<\/a>\u00a0&#8211; <span style=\"font-weight: 400;\">find TSW warrior highlights and resources for TSW patients and parent caregivers.<\/span><\/b><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/about-itsan\/\"><b>About ITSAN<\/b><\/a>\u00a0&#8211; Meet our team!\u00a0 Read ITSAN\u2019s mission, learn about our advocacy work and goals. Meet our Board of Directors and Medical Advisory Board.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\"><a href=\"https:\/\/www.itsan.org\/us\/contact-us\/\"><b>Contact Us<\/b><\/a>\u00a0&#8211; ITSAN receives inquiries from around the world, often from individuals experiencing terrible symptoms and seeking recommendations for TSW supportive doctors. Please reach out here for more information and resources.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b><\/b><b><a href=\"https:\/\/www.itsan.org\/us\/donate\/\">Donate<\/a><\/b><span style=\"font-weight: 400;\"> &#8211; How you can help: ITSAN relies on a small budget to accomplish big goals and to work towards greater awareness, pivotal change and ultimately prevention.\u00a0 Thank you for your support!\u00a0\u00a0<\/span><\/li>\n<\/ul>\n<p><b>Important Resources<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">You can subscribe to <a href=\"https:\/\/itsan.us7.list-manage.com\/subscribe?u=fa611379d0120776a4a8fe090&amp;id=757806ddf3\"><b>ITSAN\u2019s Newsletter<\/b><\/a><\/span><b>\u00a0<\/b><span style=\"font-weight: 400;\">by entering your email address within the black banner.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Scroll down further on the Landing Page and discover ITSAN\u2019s collaborations with other organizations.\u00a0\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Watch <\/span><a href=\"https:\/\/www.youtube.com\/watch?v=x4ypA9w81f0\"><b>\u201cAn Overview of TSW\u201d<\/b><\/a> <span style=\"font-weight: 400;\">\u00a0a comprehensive video about TSW made by Dr. Heba Khaled, a dentist who went through TSW.\u00a0\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Connect to <\/span><a href=\"https:\/\/www.facebook.com\/groups\/ITSANSupport\"><b>ITSAN\u2019s Facebook Support Group<\/b><\/a><span style=\"font-weight: 400;\">.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Read member testimonials.\u00a0\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Learn about ITSAN\u2019s work raising awareness, extending support, providing information, supporting research and advocacy.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Read physician statements about Topical Steroid Withdrawal Syndrome.<\/span><\/li>\n<\/ul>\n<p><b>Explore Ways You Can Help<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\">Contribute your story<span style=\"font-weight: 400;\"> &#8211; at the bottom of the Landing Page find a link to an opportunity to share your story and help fellow TSW warriors. Or email us directly at: info@itsan.org<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/itsan.net\/donate\/\"><b>Donate<\/b><\/a> <span style=\"font-weight: 400;\">&#8211; use the link to support ITSAN continue to collaborate with healthcare providers, legislators, patient organizations and suffering individuals.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Thank you for caring and supporting <\/span><a href=\"https:\/\/www.itsan.org\/us\"><span style=\"font-weight: 400;\">ITSAN.org<\/span><\/a><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_fourth  avia-builder-el-4  el_after_av_three_fourth  avia-builder-el-last  flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-072f14f3ca27dd60d4438764a7a647db\">\n.avia-image-container.av-av_image-072f14f3ca27dd60d4438764a7a647db img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-072f14f3ca27dd60d4438764a7a647db .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-072f14f3ca27dd60d4438764a7a647db av-styling- avia-align-center  avia-builder-el-5  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6256 avia-img-lazy-loading-not-6256 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/one2.jpg\" alt='' title=''  height=\"255\" width=\"300\"  itemprop=\"thumbnailUrl\"  \/><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"<p>ITSAN\u2019s website was first launched in July 2009 by Kelly Palace as AddictedSkin.com based on her personal experience suffering from Topical Steroid Withdrawal Syndrome.<\/p>\n","protected":false},"author":1,"featured_media":6256,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[5],"tags":[],"class_list":["post-5930","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5930","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=5930"}],"version-history":[{"count":7,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5930\/revisions"}],"predecessor-version":[{"id":11797,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5930\/revisions\/11797"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/6256"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=5930"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=5930"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=5930"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}