{"id":5987,"date":"2021-10-28T20:48:39","date_gmt":"2021-10-28T20:48:39","guid":{"rendered":"https:\/\/www.itsan.org\/us\/?p=5987"},"modified":"2025-08-14T14:22:55","modified_gmt":"2025-08-14T14:22:55","slug":"third-quarter-2021-newsletter","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2021\/10\/28\/third-quarter-2021-newsletter\/","title":{"rendered":"THIRD QUARTER 2021 NEWSLETTER"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-0  el_before_av_one_full  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>Third Quarter 2021 Newsletter<\/h3>\n<\/div><\/section><br \/>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-d3b9ef1ba26fc5a91b235c9341fc2576\">\n.avia-image-container.av-av_image-d3b9ef1ba26fc5a91b235c9341fc2576 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-d3b9ef1ba26fc5a91b235c9341fc2576 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-d3b9ef1ba26fc5a91b235c9341fc2576 av-styling- avia-align-left  avia-builder-el-2  el_after_av_textblock  avia-builder-el-last '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5630 avia-img-lazy-loading-not-5630 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451.png\" alt='' title=''  height=\"145\" width=\"500\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451.png 500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-300x87.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-495x145.png 495w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/ITSAN-Logo-1-e1588114678451-450x131.png 450w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/><\/div><\/div><\/div><\/p><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-3  el_after_av_one_full  el_before_av_section  avia-builder-el-last  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>Hello TSW Community!<\/strong><\/p>\n<p>We have so much to share about the steps towards raising Topical Steroid Withdrawal Syndrome awareness and prevention that brought us hope recently but before we do, we want to say keep up the hope where you are too. We know that TSW Syndrome affects every part of your life and it takes strength and courage to speak up about this preventable condition, whether to educate a loved one, communicate your needs with your doctor or your child\u2019s doctor, or to reach out for mental health support. We are with you and know that each person has different needs during TSW and everyone deserves to be validated, to access a proper diagnosis and to have support at every healing milestone.<\/p>\n<p>With you in mind, we continue the work of important partnerships that will help improve the lives of TSW sufferers and caregivers. This is a responsibility we think of every day, as we witness the growing need for support and as we advocate for TSW awareness and prevention. In October we reached 11K members in <a href=\"https:\/\/www.facebook.com\/groups\/ITSANSupport\/\">ITSAN\u2019s Private Facebook Support Group<\/a>, a place where members come together with different, personal TSW healing journeys. <a href=\"https:\/\/www.instagram.com\/itsan.nonprofit\/\">ITSAN\u2019s Instagram<\/a> has more than doubled to 4.7K followers this past year. TSW awareness is spreading and change is coming.\u00a0 In this issue we will highlight ITSAN\u2019s effort to speak up for potentially millions of TSW sufferers worldwide, and how working in partnership with stakeholders in the medical community is leading to change.<\/p>\n<p><strong>ITSAN Partnering for Change<\/strong><\/p>\n<ul>\n<li>ITSAN President Kathryn Tullos joined Dr. Peter Lio to present <strong>\u201cThe Skinny on TSW and Steroids\u201d<\/strong> at the National Eczema Association\u2019s Virtual <a href=\"https:\/\/nationaleczema.org\/eczema-expo\/\">Eczema Expo<\/a> on August 28. Discussion included the severe potential side effects of topical steroid use and the need for TSW research, physician and patient education, and safer topical steroid prescribing and monitoring guidelines.<\/li>\n<\/ul>\n<p>A recent Dermatology Times article, <a href=\"https:\/\/www.dermatologytimes.com\/view\/new-frontiers-open-for-ad-eczema-solutions\">New Frontiers Open for AD, Eczema Solutions<\/a>, highlighted Eczema Expo discussion: \u201cDiagnostic criteria are lacking, Lio said, but several important features can help identify TSW. The most sensitive signal, he said, is that when patients who have used long-term TCS discontinue treatment, eczema flares up, often at levels worse than its initial presentation.\u201d<\/p>\n<ul>\n<li>ITSAN President Kathryn Tullos and Executive Assistant Jolene MacDonald joined NEA\u2019s Eczema Expo panel, <strong>\u201cTSW: What Now?\u201d<\/strong> with Dr. Eric Simpson, Briana Banos the creator of <a href=\"https:\/\/www.youtube.com\/watch?v=RMbtf3C8BZk&amp;t=130s\">Preventable<\/a> and Linette Roungchun, TSW and eczema activist. Discussion included the current struggle many face to access an accurate diagnosis and the importance of recognition of TSW among medical providers, along with shared decision making between doctor and patient.<\/li>\n<\/ul>\n<p>Recordings of these events are currently only accessible to Expo attendees. We hope to provide access to the recorded sessions when they become available in early January 2022.<\/p>\n<\/div><\/section><\/div>\n<\/div><\/div><\/div><!-- close content main div --><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-7847a03b9e71f89b216f412ad2d4c550\">\n.avia-section.av-av_section-7847a03b9e71f89b216f412ad2d4c550{\nbackground-color:#f7f7f7;\nbackground-image:unset;\n}\n<\/style>\n<div id='av_section_1'  class='avia-section av-av_section-7847a03b9e71f89b216f412ad2d4c550 main_color avia-section-default avia-no-shadow  avia-builder-el-5  el_after_av_one_full  el_before_av_section  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>ITSAN Meeting with the FDA<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-b25b63067b86fba4b4ee576a516bbb91\">\n.avia-image-container.av-av_image-b25b63067b86fba4b4ee576a516bbb91 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-b25b63067b86fba4b4ee576a516bbb91 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-b25b63067b86fba4b4ee576a516bbb91 av-styling- avia-align-left  avia-builder-el-7  el_after_av_textblock  el_before_av_hr '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5994 avia-img-lazy-loading-not-5994 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/fda.jpg\" alt='' title=''  height=\"306\" width=\"837\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/fda.jpg 837w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/fda-300x110.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/fda-768x281.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/fda-705x258.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/fda-450x165.jpg 450w\" sizes=\"(max-width: 837px) 100vw, 837px\" \/><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-616cd310f4c6bf63bbd1f033802c1165\">\n#top .hr.hr-invisible.av-av_hr-616cd310f4c6bf63bbd1f033802c1165{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-616cd310f4c6bf63bbd1f033802c1165 hr-invisible  avia-builder-el-8  el_after_av_image  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>On September 21, Kathryn Tullos, ITSAN President\/CEO and Kelly Barta, ITSAN Executive Board Member\/Past President (seen here prepping for their FDA meeting), met with the FDA\u2019s Deputy Director of Safety and other FDA officials about Topical Steroid Withdrawal, which is currently affecting tens of thousands and potentially millions of people.<\/p>\n<p>\u201cThis meeting wouldn&#8217;t have been possible without the tremendous efforts and contributions from <strong>the thousands who showed up<\/strong> to report and share their stories in order to change the standard of care for eczema patients and raise awareness about the potential adverse effects of long term topical steroid use.&#8221; -Kelly Barta<\/p>\n<p><strong>Topics presented to the FDA included:<\/strong><\/p>\n<ul>\n<li>An Overview of Topical Steroid Withdrawal Syndrome<\/li>\n<li>Symptoms of Topical Steroid Addiction BEFORE and AFTER discontinuing topical steroids<\/li>\n<li>Estimated <a href=\"https:\/\/www.instagram.com\/p\/CLMP40PrCtD\/\">prevalence<\/a> of Topical Steroid Withdrawal Syndrome in the U.S.<\/li>\n<li>Patient Impact: Adult Experience (below is one adult patient story shared):<\/li>\n<\/ul>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-79207f0896435fc3576bd232f3bfdb2c\">\n.avia-image-container.av-av_image-79207f0896435fc3576bd232f3bfdb2c img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-79207f0896435fc3576bd232f3bfdb2c .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-79207f0896435fc3576bd232f3bfdb2c av-styling- avia-align-left  avia-builder-el-10  el_after_av_textblock  el_before_av_hr '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5998 avia-img-lazy-loading-not-5998 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-1.jpg\" alt='' title=''  height=\"446\" width=\"798\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-1.jpg 798w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-1-300x168.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-1-768x429.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-1-705x394.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-1-450x252.jpg 450w\" sizes=\"(max-width: 798px) 100vw, 798px\" \/><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-616cd310f4c6bf63bbd1f033802c1165\">\n#top .hr.hr-invisible.av-av_hr-616cd310f4c6bf63bbd1f033802c1165{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-616cd310f4c6bf63bbd1f033802c1165 hr-invisible  avia-builder-el-11  el_after_av_image  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><ul>\n<li>Patient Impact: Pediatric Experience (below is one pediatric patient story shared):<\/li>\n<\/ul>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-1c57f55f166781e835fbf09d5023e6de\">\n.avia-image-container.av-av_image-1c57f55f166781e835fbf09d5023e6de img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-1c57f55f166781e835fbf09d5023e6de .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-1c57f55f166781e835fbf09d5023e6de av-styling- avia-align-left  avia-builder-el-13  el_after_av_textblock  el_before_av_hr '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-5999 avia-img-lazy-loading-not-5999 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-1.jpg\" alt='' title=''  height=\"445\" width=\"796\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-1.jpg 796w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-1-300x168.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-1-768x429.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-1-705x394.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-1-450x252.jpg 450w\" sizes=\"(max-width: 796px) 100vw, 796px\" \/><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-616cd310f4c6bf63bbd1f033802c1165\">\n#top .hr.hr-invisible.av-av_hr-616cd310f4c6bf63bbd1f033802c1165{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-616cd310f4c6bf63bbd1f033802c1165 hr-invisible  avia-builder-el-14  el_after_av_image  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><ul>\n<li>Steroid exposure and cumulative effects in atopic dermatitis patients<\/li>\n<li>Significant gaps in labeling and instructions<\/li>\n<li>Asks for the FDA<\/li>\n<\/ul>\n<\/div><\/section>\n\n<\/div><\/div><\/div><!-- close content main div --><\/div><\/div><div id='av_section_2'  class='avia-section av-av_section-e20ec1361547d950b6e2569930d6aa41 main_color avia-section-default avia-no-shadow  avia-builder-el-16  el_after_av_section  el_before_av_section  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>ITSAN shared the following asks with the FDA:<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-1f4ec905c9b29905447ce242b212ffc0\">\n.avia-image-container.av-av_image-1f4ec905c9b29905447ce242b212ffc0 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-1f4ec905c9b29905447ce242b212ffc0 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-1f4ec905c9b29905447ce242b212ffc0 av-styling- avia-align-left  avia-builder-el-18  el_after_av_textblock  el_before_av_hr '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6001 avia-img-lazy-loading-not-6001 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/4-1.jpg\" alt='' title=''  height=\"313\" width=\"675\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/4-1.jpg 675w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/4-1-300x139.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/4-1-450x209.jpg 450w\" sizes=\"(max-width: 675px) 100vw, 675px\" \/><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-616cd310f4c6bf63bbd1f033802c1165\">\n#top .hr.hr-invisible.av-av_hr-616cd310f4c6bf63bbd1f033802c1165{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-616cd310f4c6bf63bbd1f033802c1165 hr-invisible  avia-builder-el-19  el_after_av_image  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>ITSAN also shared the concern of <strong>underreporting of TSW<\/strong> with the FDA:<\/p>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-3f8157e28dda5c8d3e8ee8fac2f2155e\">\n.avia-image-container.av-av_image-3f8157e28dda5c8d3e8ee8fac2f2155e img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-3f8157e28dda5c8d3e8ee8fac2f2155e .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-3f8157e28dda5c8d3e8ee8fac2f2155e av-styling- avia-align-left  avia-builder-el-21  el_after_av_textblock  el_before_av_hr '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6002 avia-img-lazy-loading-not-6002 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/5-1.jpg\" alt='' title=''  height=\"459\" width=\"820\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/5-1.jpg 820w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/5-1-300x168.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/5-1-768x430.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/5-1-705x395.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/5-1-450x252.jpg 450w\" sizes=\"(max-width: 820px) 100vw, 820px\" \/><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-616cd310f4c6bf63bbd1f033802c1165\">\n#top .hr.hr-invisible.av-av_hr-616cd310f4c6bf63bbd1f033802c1165{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-616cd310f4c6bf63bbd1f033802c1165 hr-invisible  avia-builder-el-22  el_after_av_image  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>During ITSAN\u2019s <a href=\"https:\/\/www.youtube.com\/watch?v=L-rCVYddrKQ&amp;t=9053s\">Spark Virtual Patient Conference<\/a> in May attendees were asked poll questions (above) and results highlighted the critical need to report adverse effects of topical steroid creams to the FDA.<\/p>\n<p>\u201cA 2001 <a href=\"https:\/\/www.slideshare.net\/ITSANNonProfit\/fdatopicalsteroids\">FDA memorandum<\/a> documented that 202 reports submitted for pediatric patients who had experienced adverse side effects to topical steroid creams spurred additions to the label. We have thousands in our groups. We need to show up. If the FDA can suggest that manufacturers add side effects after 202 reports in 2001, they can add TSW Syndrome to the warning labels in 2021.\u201d -Kathryn Tullos, ITSAN President\/CEO<\/p>\n<p>Your report is your chance to speak up about TSW Syndrome, so NO ONE has to follow in our footsteps. If you suffered or are suffering through TSW Syndrome please use the term \u201cTSW\u201d or \u201cTSW Syndrome\u201d when you report to the FDA.\u00a0 <strong>Report to the FDA<\/strong> <a href=\"http:\/\/ow.ly\/kOEX50EYeyP\">here<\/a>.<\/p>\n<p>You can report adverse drug reactions or side effects to the FDA (The United States Food and Drug Administration) from anywhere in the world. If outside the US, please also report to your country\u2019s equivalent to the FDA.<\/p>\n<p>ITSAN will meet to review discussion questions and next steps with the FDA &#8211; date TBD, following the FDA\u2019s internal meeting specific to TSW on 10\/22.<\/p>\n<\/div><\/section>\n\n<\/div><\/div><\/div><!-- close content main div --><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-7847a03b9e71f89b216f412ad2d4c550\">\n.avia-section.av-av_section-7847a03b9e71f89b216f412ad2d4c550{\nbackground-color:#f7f7f7;\nbackground-image:unset;\n}\n<\/style>\n<div id='av_section_3'  class='avia-section av-av_section-7847a03b9e71f89b216f412ad2d4c550 main_color avia-section-default avia-no-shadow  avia-builder-el-24  el_after_av_section  el_before_av_section  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>Partnering to Improve Support for TSW Sufferers and Caregivers :<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf av_one_fourth  avia-builder-el-26  el_after_av_textblock  el_before_av_three_fourth  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-f7b649aca63ea80a13d0784c25fa2a17\">\n.avia-image-container.av-av_image-f7b649aca63ea80a13d0784c25fa2a17 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-f7b649aca63ea80a13d0784c25fa2a17 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-f7b649aca63ea80a13d0784c25fa2a17 av-styling- avia-align-center  avia-builder-el-27  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6015 avia-img-lazy-loading-not-6015 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-2.jpg\" alt='' title=''  height=\"481\" width=\"296\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-2.jpg 296w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/1-2-185x300.jpg 185w\" sizes=\"(max-width: 296px) 100vw, 296px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_three_fourth  avia-builder-el-28  el_after_av_one_fourth  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">ITSAN hosted A LIVE on September 14th with Dr. Patrice Little and Briana Banos, the creator of <\/span><a href=\"https:\/\/www.youtube.com\/watch?v=RMbtf3C8BZk&amp;t=126s\"><span style=\"font-weight: 400;\">Preventable<\/span><\/a><span style=\"font-weight: 400;\">. Check out their conversation for meaningful steps a patient and doctor can take towards a positive partnership. Learn tips for how TSW patients can advocate for their health needs and how medical providers can validate and support the physical and mental health needs of their patients. Watch <\/span><a href=\"https:\/\/www.instagram.com\/p\/CT0i_S1h1uV\/\"><span style=\"font-weight: 400;\">here<\/span><\/a><span style=\"font-weight: 400;\">. <\/span><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-fbebcb4fe7f7f93a621d8b6783460008\">\n#top .hr.hr-invisible.av-av_hr-fbebcb4fe7f7f93a621d8b6783460008{\nheight:30px;\n}\n<\/style>\n<div  class='hr av-av_hr-fbebcb4fe7f7f93a621d8b6783460008 hr-invisible  avia-builder-el-30  el_after_av_three_fourth  el_before_av_one_fourth '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf av_one_fourth  avia-builder-el-31  el_after_av_hr  el_before_av_three_fourth  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-685348c064bf8f1d719ac937c787db85\">\n.avia-image-container.av-av_image-685348c064bf8f1d719ac937c787db85 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-685348c064bf8f1d719ac937c787db85 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-685348c064bf8f1d719ac937c787db85 av-styling- avia-align-center  avia-builder-el-32  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6016 avia-img-lazy-loading-not-6016 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-2.jpg\" alt='' title=''  height=\"302\" width=\"305\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-2.jpg 305w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-2-300x297.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-2-80x80.jpg 80w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-2-36x36.jpg 36w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/2-2-120x120.jpg 120w\" sizes=\"(max-width: 305px) 100vw, 305px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_three_fourth  avia-builder-el-33  el_after_av_one_fourth  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">ITSAN raised awareness, for the second year in a row, about World Atopic Eczema Day! Many within the TSW community started off with eczema and developed TSW Syndrome after using topical steroids to treat their eczema. The more we can raise awareness within the eczema community, the more we can \u201cunite\u201d and problem solve together so that TSW Syndrome can be prevented. See below for an important survey!<\/span><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-fbebcb4fe7f7f93a621d8b6783460008\">\n#top .hr.hr-invisible.av-av_hr-fbebcb4fe7f7f93a621d8b6783460008{\nheight:30px;\n}\n<\/style>\n<div  class='hr av-av_hr-fbebcb4fe7f7f93a621d8b6783460008 hr-invisible  avia-builder-el-35  el_after_av_three_fourth  el_before_av_one_fourth '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf av_one_fourth  avia-builder-el-36  el_after_av_hr  el_before_av_three_fourth  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-45fac2eca68afbc5e17711e915b98f62\">\n.avia-image-container.av-av_image-45fac2eca68afbc5e17711e915b98f62 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-45fac2eca68afbc5e17711e915b98f62 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-45fac2eca68afbc5e17711e915b98f62 av-styling- avia-align-center  avia-builder-el-37  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6003 avia-img-lazy-loading-not-6003 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/7.jpg\" alt='' title=''  height=\"439\" width=\"508\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/7.jpg 508w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/7-300x259.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/7-450x389.jpg 450w\" sizes=\"(max-width: 508px) 100vw, 508px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_three_fourth  avia-builder-el-38  el_after_av_one_fourth  el_before_av_hr  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">Jolene MacDonald, ITSAN Executive Assistant, spoke to the FDA as a panel participant at the Little Airways, Big Voices Patient-Focused Drug Development Meeting in September. She discussed her son\u2019s asthma experience during TSW Syndrome, including challenges with treatment and strategies that helped.<\/span><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-fbebcb4fe7f7f93a621d8b6783460008\">\n#top .hr.hr-invisible.av-av_hr-fbebcb4fe7f7f93a621d8b6783460008{\nheight:30px;\n}\n<\/style>\n<div  class='hr av-av_hr-fbebcb4fe7f7f93a621d8b6783460008 hr-invisible  avia-builder-el-40  el_after_av_three_fourth  el_before_av_one_fourth '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf av_one_fourth  avia-builder-el-41  el_after_av_hr  el_before_av_three_fourth  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-b706e4b5d2a08cab54c8110f8c32bf04\">\n.avia-image-container.av-av_image-b706e4b5d2a08cab54c8110f8c32bf04 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-b706e4b5d2a08cab54c8110f8c32bf04 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-b706e4b5d2a08cab54c8110f8c32bf04 av-styling- avia-align-center  avia-builder-el-42  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6005 avia-img-lazy-loading-not-6005 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/8.jpg\" alt='' title=''  height=\"504\" width=\"531\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/8.jpg 531w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/8-300x285.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/8-450x427.jpg 450w\" sizes=\"(max-width: 531px) 100vw, 531px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_three_fourth  avia-builder-el-43  el_after_av_one_fourth  avia-builder-el-last  flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">As a member of the Coalition of Skin Diseases, ITSAN advocated for TSW patients at the 2021 American Academy of Dermatology Virtual Legislative Conference. ITSAN Board members Natalie Lawton, Kelly Barta and ITSAN Executive Assistant, Jolene MacDonald represented in the House and Senate, specifically for Pennsylvania, Georgia, Maine and Vermont &#8211; and ultimately for the voices of ALL of the TSW community!<\/span><\/p>\n<\/div><\/section><\/div><\/div><\/div><\/div><!-- close content main div --><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-b1e528c941cb518cfe779a1002906078\">\n.avia-section.av-av_section-b1e528c941cb518cfe779a1002906078{\nbackground-color:#ffffff;\nbackground-image:unset;\n}\n<\/style>\n<div id='av_section_4'  class='avia-section av-av_section-b1e528c941cb518cfe779a1002906078 main_color avia-section-default avia-no-shadow  avia-builder-el-45  el_after_av_section  el_before_av_section  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>SURVEY!<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-47  el_after_av_textblock  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-95ee88715cbe19751f857d1a61e90cd8\">\n.avia-image-container.av-av_image-95ee88715cbe19751f857d1a61e90cd8 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-95ee88715cbe19751f857d1a61e90cd8 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-95ee88715cbe19751f857d1a61e90cd8 av-styling- avia-align-left  avia-builder-el-48  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6006 avia-img-lazy-loading-not-6006 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-1030x543.jpg\" alt='' title='caf'  height=\"543\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-1030x543.jpg 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-300x158.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-768x405.jpg 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-710x375.jpg 710w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-705x372.jpg 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf-450x237.jpg 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/caf.jpg 1197w\" sizes=\"(max-width: 1030px) 100vw, 1030px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-49  el_after_av_one_full  avia-builder-el-last  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>Call to Action <\/strong>&#8211;\u00a0 Did your TSW begin with eczema?\u00a0 We need your voice!<\/p>\n<p>ITSAN is partnering with the <a href=\"http:\/\/www.improveeczemacare.com\/\">Global Patient Initiative to Improve Eczema Care <\/a>to explore how patients with eczema and their caregivers experience medical care, treatments, and the burden of the condition. If you are a patient or a parent of a child with eczema and\/or if you are experiencing TSW due to treatment used to treat eczema, please take a few minutes to complete a brief <a href=\"https:\/\/gper.limesurvey.net\/948387?lang=en\"><strong>survey<\/strong><\/a> in order to contribute to this study. <strong>Participants will be entered into a drawing for a USD $100 gift card. <\/strong>Thank you in advance!<\/p>\n<\/div><\/section><\/div>\n<\/p>\n<\/div><\/div><\/div><!-- close content main div --><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-7847a03b9e71f89b216f412ad2d4c550\">\n.avia-section.av-av_section-7847a03b9e71f89b216f412ad2d4c550{\nbackground-color:#f7f7f7;\nbackground-image:unset;\n}\n<\/style>\n<div id='av_section_5'  class='avia-section av-av_section-7847a03b9e71f89b216f412ad2d4c550 main_color avia-section-default avia-no-shadow  avia-builder-el-51  el_after_av_section  el_before_av_section  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>TSW Syndrome Awareness in the News &amp; Community<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf av_one_third  avia-builder-el-53  el_after_av_textblock  el_before_av_two_third  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-f8aad48fe006b2d6e56e54958ec7eadd\">\n.avia-image-container.av-av_image-f8aad48fe006b2d6e56e54958ec7eadd img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-f8aad48fe006b2d6e56e54958ec7eadd .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-f8aad48fe006b2d6e56e54958ec7eadd av-styling- avia-align-left  avia-builder-el-54  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6007 avia-img-lazy-loading-not-6007 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/11.jpg\" alt='' title=''  height=\"508\" width=\"427\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/11.jpg 427w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/11-252x300.jpg 252w\" sizes=\"(max-width: 427px) 100vw, 427px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_two_third-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_two_third-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_two_third-c8fc129dc35fd1ae2a1e410224d39ea8 av_two_third  avia-builder-el-55  el_after_av_one_third  el_before_av_one_third  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Check out this recent <a href=\"http:\/\/ow.ly\/GqUY50GcXLG\">press release<\/a> from GOV.UK to see the steps towards TSW Syndrome awareness and prevention happening in the United Kingdom with the help of MHRA, <a href=\"https:\/\/www.instagram.com\/scratchthat.uk\/\">@scratchthat.uk<\/a>, TSW activists and topical steroid adverse effect reporters!<\/p>\n<p>\u201cProduct information for topical corticosteroids is being updated to include safety warnings on withdrawal reactions. We have developed a patient safety leaflet to support patients and health care professionals, which includes advice on how to reduce the risk of severe reactions.\u201d -Medicines and Healthcare products Regulatory Agency (MHRA)<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_third-15d750bd1b332b34c6e70b077ebbccdf av_one_third  avia-builder-el-57  el_after_av_two_third  el_before_av_two_third  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-14487d7059839c5045e227205fdfa3ce\">\n.avia-image-container.av-av_image-14487d7059839c5045e227205fdfa3ce img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-14487d7059839c5045e227205fdfa3ce .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-14487d7059839c5045e227205fdfa3ce av-styling- avia-align-left  avia-builder-el-58  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6008 avia-img-lazy-loading-not-6008 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/12.jpg\" alt='' title=''  height=\"482\" width=\"526\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/12.jpg 526w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/12-300x275.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/10\/12-450x412.jpg 450w\" sizes=\"(max-width: 526px) 100vw, 526px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_two_third-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_two_third-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_two_third-c8fc129dc35fd1ae2a1e410224d39ea8 av_two_third  avia-builder-el-59  el_after_av_one_third  avia-builder-el-last  flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Every voice helps end TSW Syndrome. Thank you to the TSW community for continuing to speak up about TSW.<\/p>\n<ol>\n<li>Jake\u2019s story <a href=\"http:\/\/ow.ly\/srH250GlPpw\">here<\/a>.<\/li>\n<li>Savannah &amp; Boaz\u2019s story <a href=\"http:\/\/ow.ly\/on8q50GlPpB\">here<\/a>.<\/li>\n<li>Keri\u2019s story <a href=\"http:\/\/ow.ly\/GHBd50GlPpz\">here<\/a>.<\/li>\n<li>Sarah &amp; Scarlet\u2019s story <a href=\"http:\/\/ow.ly\/y3DP50GlPpx\">here<\/a>.<\/li>\n<li>Megan\u2019s story <a href=\"http:\/\/ow.ly\/5kBD50GlPpA\">here<\/a>.<\/li>\n<li>Georgianna\u2019s story <a href=\"http:\/\/ow.ly\/eiwy50GlPpy\">here<\/a>.<\/li>\n<\/ol>\n<\/div><\/section><\/div>\n\n<\/div><\/div><\/div><!-- close content main div --><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-b1e528c941cb518cfe779a1002906078\">\n.avia-section.av-av_section-b1e528c941cb518cfe779a1002906078{\nbackground-color:#ffffff;\nbackground-image:unset;\n}\n<\/style>\n<div id='av_section_6'  class='avia-section av-av_section-b1e528c941cb518cfe779a1002906078 main_color avia-section-default avia-no-shadow  avia-builder-el-61  el_after_av_section  el_before_av_section  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>ITSAN Board News!<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-63  el_after_av_textblock  avia-builder-el-last  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>In August, ITSAN welcomed Natalie Lawton to the Board of Directors. Natalie is a certified Health Coach with a master\u2019s degree in Counseling Psychology and a background in Human Resources. She joined ITSAN while still caring for her 20-year-old daughter recovering from TSW Syndrome. Natalie is focused on spreading awareness of TSW, enhancing resources and providing guidance in the ITSAN support group.<\/p>\n<p><strong><u>Help Us Fund A Patient Registry<\/u><\/strong><\/p>\n<p>Thank you to an ITSAN Veteran turning 60 who celebrated by matching any donations made to ITSAN during September up to $5k. Thank you to every donor who contributed! We will continue to fundraise towards creating a patient registry which will turn anecdotal stories into data points and eventually, into much needed research for TSW Syndrome. <strong>Please donate on our <\/strong><a href=\"https:\/\/www.itsan.org\/us\/donate\/\"><strong>website<\/strong><\/a><strong> or through our <\/strong><a href=\"http:\/\/paypal.com\/us\/fundraiser\/charity\/221552\"><strong>PayPal Giving Fund<\/strong><\/a><strong>.\u00a0 It counts!!<\/strong><\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong><u>Speak Up About TSW<\/u><\/strong><\/p>\n<p><strong>Share Your Voice<\/strong>: If ITSAN has helped you, please consider writing a review at Great Nonprofits so we stay <a href=\"https:\/\/greatnonprofits.org\/org\/international-topical-steroid-awareness-network-itsan\">Top Rated for 2021<\/a><a href=\"https:\/\/greatnonprofits.org\/org\/international-topical-steroid-awareness-network-itsan\">.<\/a><\/p>\n<p><strong>Share Your Story<\/strong>: Thank you to every TSW warrior and caregiver for the courage to share your story and pictures and to raise awareness on the difference between TSW and eczema. Every story has the power to bring change.\u00a0 Share your story with us:\u00a0 <a href=\"mailto:info@itsan.org\">info@itsan.org<\/a><\/p>\n<\/div><\/section><\/div>\n\n<\/div><\/div><\/div><!-- close content main div --><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-7847a03b9e71f89b216f412ad2d4c550\">\n.avia-section.av-av_section-7847a03b9e71f89b216f412ad2d4c550{\nbackground-color:#f7f7f7;\nbackground-image:unset;\n}\n<\/style>\n<div id='av_section_7'  class='avia-section av-av_section-7847a03b9e71f89b216f412ad2d4c550 main_color avia-section-default avia-no-shadow  avia-builder-el-65  el_after_av_section  avia-builder-el-last  avia-bg-style-scroll container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-5987'><div class='entry-content-wrapper clearfix'>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h3>Thank you to our Sponsors<\/h3>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-67  el_after_av_textblock  el_before_av_one_fourth  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p>ITSAN has 2 amazing sponsors! The generous giving of our sponsors allows us to do the important work of our mission &#8211; raising awareness of TSW and supporting all affected individuals.<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-15d750bd1b332b34c6e70b077ebbccdf av_one_fourth  avia-builder-el-69  el_after_av_one_full  el_before_av_one_half  first flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-6136d0f7b1cc33b450279bcd29f0cc1e\">\n.avia-image-container.av-av_image-6136d0f7b1cc33b450279bcd29f0cc1e img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-6136d0f7b1cc33b450279bcd29f0cc1e .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-6136d0f7b1cc33b450279bcd29f0cc1e av-styling- avia-align-left  avia-builder-el-70  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-185 avia-img-lazy-loading-not-185 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web.jpg\" alt='' title='yoro_logo_orange_web'  height=\"226\" width=\"226\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web.jpg 226w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-80x80.jpg 80w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-36x36.jpg 36w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-180x180.jpg 180w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/yoro_logo_orange_web-120x120.jpg 120w\" sizes=\"(max-width: 226px) 100vw, 226px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_half-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_half  avia-builder-el-71  el_after_av_one_fourth  el_before_av_hr  flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-4d61ee79c2b459d236303afd7621d40e\">\n.avia-image-container.av-av_image-4d61ee79c2b459d236303afd7621d40e img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-4d61ee79c2b459d236303afd7621d40e .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-4d61ee79c2b459d236303afd7621d40e av-styling- avia-align-left  avia-builder-el-72  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-184 avia-img-lazy-loading-not-184 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png\" alt='' title='Balmonds-logo-hi-res-green'  height=\"356\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1030x356.png 1030w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-300x104.png 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-768x265.png 768w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1536x531.png 1536w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-1500x518.png 1500w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-705x244.png 705w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green-450x156.png 450w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2021\/05\/Balmonds-logo-hi-res-green.png 1600w\" sizes=\"(max-width: 1030px) 100vw, 1030px\" \/><\/div><\/div><\/div><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-616cd310f4c6bf63bbd1f033802c1165\">\n#top .hr.hr-invisible.av-av_hr-616cd310f4c6bf63bbd1f033802c1165{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-616cd310f4c6bf63bbd1f033802c1165 hr-invisible  avia-builder-el-73  el_after_av_one_half  el_before_av_textblock '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n<section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>If you would like to become a sponsor<\/strong>, or know someone who would, please email or pass on our contact information &#8211; <a href=\"mailto:info@itsan.org\">info@itsan.org<\/a><\/p>\n<p><strong>And THANK YOU!<\/strong> A heartfelt thank you to all of our donors whose generosity has allowed us to do this important work.\u00a0 No one should go through this debilitating condition alone or without proper medical support.<\/p>\n<p>Together we can raise awareness and prevent this condition for others in the future. <strong>Please donate on our <\/strong><a href=\"https:\/\/www.itsan.org\/us\/donate\/\"><strong>website<\/strong><\/a><strong> or through our <\/strong><a href=\"http:\/\/paypal.com\/us\/fundraiser\/charity\/221552\"><strong>PayPal Giving Fund<\/strong><\/a><strong>.\u00a0 <\/strong>Remember in the US, you can donate with every AMAZON purchase on <a href=\"https:\/\/smile.amazon.com\/\">AmazonSmile<\/a>. Choose International Topical Steroid Awareness Network as your charity.<\/p>\n<p>Many employers will also <strong><u>match funds<\/u><\/strong>, which ITSAN qualifies for using Tax ID 45-4556484 and address P.O. Box 303, Dacula, GA 30019.\u00a0 For help contact Jodie Ohr at <a href=\"mailto:johr@itsan.org\">johr@itsan.org<\/a>.<\/p>\n<p>Thank you all!<\/p>\n<\/div><\/section>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":6182,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[25],"tags":[],"class_list":["post-5987","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5987","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=5987"}],"version-history":[{"count":17,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5987\/revisions"}],"predecessor-version":[{"id":6193,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/5987\/revisions\/6193"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/6182"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=5987"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=5987"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=5987"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}