{"id":6709,"date":"2022-04-05T23:42:34","date_gmt":"2022-04-05T23:42:34","guid":{"rendered":"https:\/\/www.itsan.org\/us\/?p=6709"},"modified":"2025-08-14T14:22:40","modified_gmt":"2025-08-14T14:22:40","slug":"press-release-from-the-global-patient-initiative-to-improve-eczema-care","status":"publish","type":"post","link":"https:\/\/www.itsan.org\/us\/2022\/04\/05\/press-release-from-the-global-patient-initiative-to-improve-eczema-care\/","title":{"rendered":"PRESS RELEASE &#8211; from the Global Patient Initiative to Improve Eczema Care"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_full-15d750bd1b332b34c6e70b077ebbccdf av_one_full  avia-builder-el-0  el_before_av_three_fourth  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-af2486c98eb2bad6583520c526f65b79\">\n#top .av-special-heading.av-av_heading-af2486c98eb2bad6583520c526f65b79{\npadding-bottom:10px;\n}\nbody .av-special-heading.av-av_heading-af2486c98eb2bad6583520c526f65b79 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-af2486c98eb2bad6583520c526f65b79 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-af2486c98eb2bad6583520c526f65b79 av-special-heading-h3  avia-builder-el-1  avia-builder-el-no-sibling '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >PRESS RELEASE &#8211; from the Global Patient Initiative to Improve Eczema Care<\/h3><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fourth-15d750bd1b332b34c6e70b077ebbccdf\">\n.flex_column.av-av_three_fourth-15d750bd1b332b34c6e70b077ebbccdf{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_three_fourth-15d750bd1b332b34c6e70b077ebbccdf av_three_fourth  avia-builder-el-2  el_after_av_one_full  el_before_av_one_fourth  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-av_textblock-2de302bf1aa3cf4c9157dbe6f50ac7eb '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p><strong>Global Scorecard Highlights Unmet Needs of Eczema Patients Worldwide And Strategies for Addressing Them<\/strong><\/p>\n<p><em>New study finds low treatment satisfaction, poor control of symptoms, high psychosocial burden and shortcomings in patient centered care for eczema patients worldwide.<\/em><\/p>\n<p>SANTA BARBARA, Calif.,\u00a0March 28, 2022\u00a0&#8211; The <a href=\"http:\/\/www.improveeczemacare.com\" target=\"_blank\" rel=\"noopener\">Global Patient Initiative to Improve Eczema Care <\/a>(GPIIEC), a partnership of eleven patient organizations, today released a global <a href=\"http:\/\/www.improveeczemacare.com\" target=\"_blank\" rel=\"noopener\">report card<\/a> of eczema patient care in eight countries: Australia,\u00a0Canada,\u00a0Denmark,\u00a0France,\u00a0Italy,\u00a0Germany,\u00a0United States, and the\u00a0United Kingdom. The Initiative is a global collaboration to establish a common &#8220;yardstick&#8221; to assess the responsiveness of health systems to the needs of patients and their caregivers, and to identify opportunities for improvement.<\/p>\n<p>Eczema is a chronic relapsing inflammatory skin condition that impacts approximately 15% to 20% of children and 1% to 3% of adults globally, resulting in a significant patient burden and high demand on health care systems.\u00a0 A global survey by the GPIIEC that received over 3,200 responses found that patients in every country, and particularly those who live with moderate-to-severe eczema, are struggling to achieve long-term control of their eczema symptoms and report limited satisfaction with current treatments.<\/p>\n<p>Poorly controlled eczema that can\u2019t be fully addressed by existing treatments substantially impacts patients\u2019 health-related quality of life. Based on adult patients&#8217; descriptions of their health, they would give up between 17-36 percent of their remaining life span in order to be restored to perfect health. Key drivers of this detriment in quality of life were the pain and discomfort of eczema and the mental health impacts such as anxiety and depression.<\/p>\n<p>&#8220;We have work to do to improve care for people with eczema worldwide. This data helps us see\u00a0 the gaps and know where to focus our attention,\u201d said\u00a0Marjolaine Hering, with Association Fran\u00e7aise de l&#8217;Ecz\u00e9ma.<\/p>\n<p>Moderate-to-severe eczema is complex and chronic, demanding a high degree of patient involvement in ongoing symptom management. However, training for this role is minimal and patient input into treatment decisions is lacking in almost every country surveyed. Interestingly, shared decision making, defined as asking patients and caregivers about their priorities during a medical visit, was predictive of symptom control. This finding suggests that such involvement may improve medical care and outcomes, and serves as a target for improvement for health systems in each country.<\/p>\n<p>\u201cThrough this initiative we are discovering how patients are faring in our country and worldwide and learning from the other patient organizations how to advocate for better medical care and supports for people with eczema,\u201d said Thomas Schwennesen of the Deutscher Neurodermitis Bund in Germany.<\/p>\n<p>About Global Patient Initiative to Improve Eczema Care (GPIIEC)<br \/>\nGPIIEC\u00a0is a patient organization-led effort to measure the performance of health systems in meeting the needs of people with eczema (atopic dermatitis) and their caregivers using a common methodology to allow for direct comparisons. For more information:\u00a0<a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3289215-1&amp;h=4255147737&amp;u=http%3A%2F%2Fwww.improveeczemacare.org%2F&amp;a=www.improveeczemacare.org\" target=\"_blank\" rel=\"noopener\">www.improveeczemacare.org<\/a><\/p>\n<p>About Global Parents for Eczema Research (GPER)<br \/>\nGPER is a grassroots, non-profit organization based in\u00a0California\u00a0whose mission is to improve quality of life and reduce suffering for children with moderate to severe eczema and their families. For more information:\u00a0<a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3289215-1&amp;h=2759849968&amp;u=http%3A%2F%2Fwww.parentsforeczemaresearch.com%2F&amp;a=www.parentsforeczemaresearch.com\" target=\"_blank\" rel=\"noopener\">www.parentsforeczemaresearch.com<\/a><\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8\">\n.flex_column.av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-av_one_fourth-c8fc129dc35fd1ae2a1e410224d39ea8 av_one_fourth  avia-builder-el-4  el_after_av_three_fourth  avia-builder-el-last  flex_column_div av-zero-column-padding  column-top-margin'     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-087c0d9e683960bb118c790224978c86\">\n.avia-image-container.av-av_image-087c0d9e683960bb118c790224978c86 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-087c0d9e683960bb118c790224978c86 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-087c0d9e683960bb118c790224978c86 av-styling- avia-align-center  avia-builder-el-5  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-6710 avia-img-lazy-loading-not-6710 avia_image ' src=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/04\/global.jpg\" alt='' title=''  height=\"400\" width=\"495\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/04\/global.jpg 495w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/04\/global-300x242.jpg 300w, https:\/\/www.itsan.org\/us\/wp-content\/uploads\/2022\/04\/global-450x364.jpg 450w\" sizes=\"(max-width: 495px) 100vw, 495px\" \/><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"<p>PRESS RELEASE &#8211; from the Global Patient Initiative to Improve Eczema Care<\/p>\n","protected":false},"author":1,"featured_media":9345,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[25],"tags":[],"class_list":["post-6709","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/6709","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/comments?post=6709"}],"version-history":[{"count":7,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/6709\/revisions"}],"predecessor-version":[{"id":9390,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/posts\/6709\/revisions\/9390"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media\/9345"}],"wp:attachment":[{"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/media?parent=6709"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/categories?post=6709"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.itsan.org\/us\/wp-json\/wp\/v2\/tags?post=6709"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}