In this issue we will highlight advocacy work happening worldwide and the potential for local, national and global TSWS awareness to bring accurate diagnosis, early detection, proper treatment and ultimately prevention. Raising awareness of Topical Steroid Withdrawal Syndrome to support affected individuals, caregivers and healthcare providers is ITSAN’s mission.
In May ITSAN hosted the Spark Virtual Patient Conference with over 250 registrants representing 20 countries! Sessions focused on TSW advocacy, integrative treatments, mental health support, mindfulness and TSW success stories. Breakout sessions brought together TSW caregivers, men and women experiencing TSW and a special cartooning session for TSW warrior kids and their siblings.
Watch the full conference here. (Breakout sessions were not recorded to protect the privacy of attendees)
Thank you to those who donated towards the Spark Conference! With your support and a Member Impact Fund grant from The International Alliance of Dermatology Patient Organizations (IADPO), we were able to upgrade our Zoom and cloud storage and hire a tech expert to help us reach over 20 countries. The conference funds raised did not cover all of the above expenses so if you are able to donate – thank you!
We need donations in order to operate. Please donate via ITSAN’s PayPal Giving Fund.
We will continue fundraising for projects coming up including updating ITSAN’s website and an educational brochure for patients to share with their doctors. Every small donation adds up to support ITSAN’s mission to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. Thank you to our donors past, present and future!
During the Spark conference attendees were asked the following poll questions. Results reflect the critical need for supportive medical and mental health care during Topical Steroid Withdrawal Syndrome.
If you would like to become a sponsor, or know someone who would, please email or pass on our contact information – email@example.com
And THANK YOU! A heartfelt thank you to all of our donors whose generosity has allowed us to do this important work. No one should go through this debilitating condition alone or without proper medical support. Without your support, we could not have grown and taken giant leaps in building bridges with the medical community. Together we can raise awareness and prevent this condition for others in the future. Please donate on our website or through our PayPal Giving Fund. Remember in the US, you can donate with every AMAZON purchase on AmazonSmile. Choose International Topical Steroid Awareness Network as your charity.
Many employers will also match funds, which ITSAN qualifies for using Tax ID 45-4556484 and address P.O. Box 303, Dacula, GA 30019. For help contact Jodie Ohr at firstname.lastname@example.org.
Hang in there!